Oxford textbook of palliative care for children:
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Oxford [u.a.]
Oxford Univ. Press
2006
|
| Ausgabe: | 1. publ. |
| Schlagworte: | |
| Online-Zugang: | Table of contents Klappentext Inhaltsverzeichnis |
| Beschreibung: | XII, 661 S. Ill., graph. Darst. |
| ISBN: | 0198526539 9780198526537 |
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| 650 | 4 | |a Enfants malades en phase terminale - Soins | |
| 650 | 4 | |a Soins palliatifs | |
| 650 | 4 | |a Terminally ill children |x Care | |
| 650 | 4 | |a Palliative treatment | |
| 650 | 4 | |a Palliative Care | |
| 650 | 4 | |a Terminal Care | |
| 650 | 4 | |a Attitude to Death | |
| 650 | 4 | |a Child | |
| 650 | 4 | |a Cross-Cultural Comparison | |
| 650 | 4 | |a Family | |
| 650 | 4 | |a Pastoral Care | |
| 650 | 4 | |a Religious Philosophies | |
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Datensatz im Suchindex
| _version_ | 1804135463192100864 |
|---|---|
| adam_text | Palliative care in
its sister specialty in adults. While it is increasingly
recognised thai, ch udren with life-limiting
conditions have distinct needs that must be
addressed in a child-centred context, it is still
unusual in most countries for children to have the
same access to expert palliative care that many
adults can now expect. For too many children,
dying remains unnecessarily isolated and
uncomfortable.
The Oxford Textbook of Palliative Care for Children
is for all those caring for children suffering from terminal or
conditions, and their families. Its aim is to help professionals in their goal of
maximising the quality of life for such children, adding
even when it is no longer possible to add years to their life .
The book aims to do this in three ways. Firstly, it provides a practical resource,
offering rational approaches to care, reviewing the evidence-base, and
considering practical and ethical issues. The book addresses areas as diverse
as symptom control, spirituality, education, and service development. AH
set in a multidimensional. holistic context, considering the child s
psychosocial,
Secondly, the book explores the whole breadth of palliative care across all
diagnoses. Palliative care in children extends well beyond the traditional
adult, cancer-based model. The Oxford Textbook addresses the full range of
life-limiting conditions in childhood, from the rapid progression that
characterises some malignancies to the slow deterioration over years or
decades often associated with cerebral palsy, metabolic conditions, and
other
Lastly, the book brings together in one place the experience and knowledge of
a group of professionals working in palliative care in children, from many
countries and across many divides. Contributors include doctors, nurses,
educators, therapists and social workers, as well as many other disciplines,
who come from children s hospices and community-based palliative care
teams as well as hospital-based teams, and with diverse backgrounds mat
include intensive care, general practice, oncology, and general paediatrics.
They have in common an understanding of the needs of children with
life-limiting conditions, and experience in meeting them.
Whether it is only occasionally in the course of other work with children,
or is thei r main interest and specialty, all those who care for children with
life-limiting conditions and support their families, wilt find this book an
indispensable, authoritative and comprehensive resource.
Contents
Preface v
List of contributors ix
List of abbreviations xi
Section 1 Foundations of care
1 Development and epidemiology 3
Simon Lenton, Ann Goldman, Nicola Eaton, and
David Southall
2 The child s journey: Transition from
health to ill-health 14
Jenny L. Hynson
3 Communication 28
Gwynneth Down and Jean Simons
4 Ethics 42
VicLarcher
Section 2 Child and family care
5 Through the creative lens of the artist: Society s
perceptions of death in children 63
Sandra Bertman and Judith Leet
6 The spiritual life 74
Brother Francis, OSB
7 Children s views of death 85
Myra Bluebond-Langner and Amy DeCicco
8 Psychological impact of life-limiting conditions
on the child 95
Barbara M. Sourkes
9 Adolescents and young adults 108
Finella Craig
10 Children expressing themselves 119
TrygveAasgaard
11 School 128
Isabel Wood
12 The power of their voices: Child and family
assessment in pediatric palliative care 143
Nancy Contro and Sarah Scofield
13 Impact of life-limiting illness on the
family 154
Mary Lewis and Helen Prescott
14 After the child s death: Family care 179
Sister Frances Dominica
15 Bereavement 193
Betty Davies, Thomas Attig, and Michael Towne
16 Ritual and religion 204
Erica Brown
Section 3 Symptom care
17 Symptoms in life-threatening illness: Overview
and assessment 231
Gerri Frager and John J. Collins
18 Using medications 248
Nigel Ballantine and Nicki Fitzmaurice
19 Pain: An introduction 268
John J. Collins and Suellen Walker
20 Pain: Assessment 281
Anne Hunt
21 Pain—pharmacological management 304
Ross Drake and Richard Hain
22 Pain—an integrative approach 332
Leora Kuttner
23 Gastrointestinal symptoms 342
Marek W. Karwacki
24 Feeding in palliative care 374
Angela Thompson, Anita MacDonald,
and Chris Holden
25 Depression, anxiety, anger and delirium 387
Renee McCulloch and Jim F. Hammel
26 Neurological and neuromuscular symptoms 409
Kate W. Faulkner, PaulB. Thayer, and David L. Coulter
27 Respiratory symptoms 438
Stephen Liben, Richard Hain, and Ann Goldman
28 Skin symptoms 448
Gillian Watterson, Jacqueline Denyer, and Richard Hain
29 Haematological symptoms 460
Erica Mackie and Marie-Louise Millard
30 HIV/AIDS 469
Debbie Norval, Bemadette O Hare, andRodica Matusa
31 Complementary and alternative medicine 482
David M. Steinhorn and Michelle Rogers
32 Symptom control at the end-of-life 497
Dawn Davies and Debbie de Vlaming
Section 4 Delivery of care
33 Working as a team 513
Satbir S. Jassal and Jo Sims
34 Healthcare providers responses
to the death of a child 521
Danai Papadatou
35 Place of care 533
Lynda Brook, Jan Vickers, and Muriel Barber
36 Intensive care units 549
Stephen Liben and Tom Lissauer
37 International aspects 557
Ann Goldman, David Southall, Simon Lenton, and
Nicola Eaton
38 Quality assurance 573
Harold Siden
39 Education and training 594
Linda M. Ferguson, Susan Fowler-Kerry,
and Richard Hain
40 Research 615
Robert Graham, Veronica Dussel, and Joanne Wolfe
Appendix: Drug doses 648
Victoria Lidstone
Index 651
|
| adam_txt |
Palliative care in
its sister specialty in adults. While it is increasingly
recognised thai, ch'udren with life-limiting
conditions have distinct needs that must be
addressed in a child-centred context, it is still
unusual in most countries for children to have the
same access to expert palliative care that many
adults can now expect. For too many children,
dying remains unnecessarily isolated and
uncomfortable.
The Oxford Textbook of Palliative Care for Children
is for all those caring for children suffering from terminal or
conditions, and their families. Its aim is to help professionals in their goal of
maximising the quality of life for such children, adding
even when it is no longer possible to add 'years to their life'.
The book aims to do this in three ways. Firstly, it provides a practical resource,
offering rational approaches to care, reviewing the evidence-base, and
considering practical and ethical issues. The book addresses areas as diverse
as symptom control, spirituality, education, and service development. AH
set in a multidimensional.'holistic' context, considering the child's
psychosocial,
Secondly, the book explores the whole breadth of palliative care across all
diagnoses. Palliative care in children extends well beyond the traditional
adult, cancer-based model. The Oxford Textbook addresses the full range of
life-limiting conditions in childhood, from the rapid progression that
characterises some malignancies to the slow deterioration over years or
decades often associated with cerebral palsy, metabolic conditions, and
other
Lastly, the book brings together in one place the experience and knowledge of
a group of professionals working in palliative care in children, from many
countries and across many divides. Contributors include doctors, nurses,
educators, therapists and social workers, as well as many other disciplines,
who come from children's hospices and community-based palliative care
teams as well as hospital-based teams, and with diverse backgrounds mat
include intensive care, general practice, oncology, and general paediatrics.
They have in common an understanding of the needs of children with
life-limiting conditions, and experience in meeting them.
Whether it is only occasionally in the course of other work with children,
or is thei r main interest and specialty, all those who care for children with
life-limiting conditions and support their families, wilt find this book an
indispensable, authoritative and comprehensive resource.
Contents
Preface v
List of contributors ix
List of abbreviations xi
Section 1 Foundations of care
1 Development and epidemiology 3
Simon Lenton, Ann Goldman, Nicola Eaton, and
David Southall
2 The child's journey: Transition from
health to ill-health 14
Jenny L. Hynson
3 Communication 28
Gwynneth Down and Jean Simons
4 Ethics 42
VicLarcher
Section 2 Child and family care
5 Through the creative lens of the artist: Society's
perceptions of death in children 63
Sandra Bertman and Judith Leet
6 The spiritual life 74
Brother Francis, OSB
7 Children's views of death 85
Myra Bluebond-Langner and Amy DeCicco
8 Psychological impact of life-limiting conditions
on the child 95
Barbara M. Sourkes
9 Adolescents and young adults 108
Finella Craig
10 Children expressing themselves 119
TrygveAasgaard
11 School 128
Isabel Wood
12 The power of their voices: Child and family
assessment in pediatric palliative care 143
Nancy Contro and Sarah Scofield
13 Impact of life-limiting illness on the
family 154
Mary Lewis and Helen Prescott
14 After the child's death: Family care 179
Sister Frances Dominica
15 Bereavement 193
Betty Davies, Thomas Attig, and Michael Towne
16 Ritual and religion 204
Erica Brown
Section 3 Symptom care
17 Symptoms in life-threatening illness: Overview
and assessment 231
Gerri Frager and John J. Collins
18 Using medications 248
Nigel Ballantine and Nicki Fitzmaurice
19 Pain: An introduction 268
John J. Collins and Suellen Walker
20 Pain: Assessment 281
Anne Hunt
21 Pain—pharmacological management 304
Ross Drake and Richard Hain
22 Pain—an integrative approach 332
Leora Kuttner
23 Gastrointestinal symptoms 342
Marek W. Karwacki
24 Feeding in palliative care 374
Angela Thompson, Anita MacDonald,
and Chris Holden
25 Depression, anxiety, anger and delirium 387
Renee McCulloch and Jim F. Hammel
26 Neurological and neuromuscular symptoms 409
Kate W. Faulkner, PaulB. Thayer, and David L. Coulter
27 Respiratory symptoms 438
Stephen Liben, Richard Hain, and Ann Goldman
28 Skin symptoms 448
Gillian Watterson, Jacqueline Denyer, and Richard Hain
29 Haematological symptoms 460
Erica Mackie and Marie-Louise Millard
30 HIV/AIDS 469
Debbie Norval, Bemadette O'Hare, andRodica Matusa
31 Complementary and alternative medicine 482
David M. Steinhorn and Michelle Rogers
32 Symptom control at the end-of-life 497
Dawn Davies and Debbie de Vlaming
Section 4 Delivery of care
33 Working as a team 513
Satbir S. Jassal and Jo Sims
34 Healthcare providers' responses
to the death of a child 521
Danai Papadatou
35 Place of care 533
Lynda Brook, Jan Vickers, and Muriel Barber
36 Intensive care units 549
Stephen Liben and Tom Lissauer
37 International aspects 557
Ann Goldman, David Southall, Simon Lenton, and
Nicola Eaton
38 Quality assurance 573
Harold Siden
39 Education and training 594
Linda M. Ferguson, Susan Fowler-Kerry,
and Richard Hain
40 Research 615
Robert Graham, Veronica Dussel, and Joanne Wolfe
Appendix: Drug doses 648
Victoria Lidstone
Index 651 |
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| index_date | 2024-07-02T15:04:05Z |
| indexdate | 2024-07-09T20:40:54Z |
| institution | BVB |
| isbn | 0198526539 9780198526537 |
| language | English |
| lccn | 2005023371 |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-014869489 |
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| physical | XII, 661 S. Ill., graph. Darst. |
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| spelling | Oxford textbook of palliative care for children ed. by Ann Goldman ... Palliative care for children 1. publ. Oxford [u.a.] Oxford Univ. Press 2006 XII, 661 S. Ill., graph. Darst. txt rdacontent n rdamedia nc rdacarrier Enfants malades en phase terminale - Soins Soins palliatifs Terminally ill children Care Palliative treatment Palliative Care Terminal Care Attitude to Death Child Cross-Cultural Comparison Family Pastoral Care Religious Philosophies Kind (DE-588)4030550-8 gnd rswk-swf Palliativtherapie (DE-588)4115490-3 gnd rswk-swf Kind (DE-588)4030550-8 s Palliativtherapie (DE-588)4115490-3 s b DE-604 Goldman, Ann Sonstige oth http://www.loc.gov/catdir/toc/ecip0518/2005023371.html Table of contents Digitalisierung UB Regensburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014869489&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Klappentext HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014869489&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Oxford textbook of palliative care for children Enfants malades en phase terminale - Soins Soins palliatifs Terminally ill children Care Palliative treatment Palliative Care Terminal Care Attitude to Death Child Cross-Cultural Comparison Family Pastoral Care Religious Philosophies Kind (DE-588)4030550-8 gnd Palliativtherapie (DE-588)4115490-3 gnd |
| subject_GND | (DE-588)4030550-8 (DE-588)4115490-3 |
| title | Oxford textbook of palliative care for children |
| title_alt | Palliative care for children |
| title_auth | Oxford textbook of palliative care for children |
| title_exact_search | Oxford textbook of palliative care for children |
| title_exact_search_txtP | Oxford textbook of palliative care for children |
| title_full | Oxford textbook of palliative care for children ed. by Ann Goldman ... |
| title_fullStr | Oxford textbook of palliative care for children ed. by Ann Goldman ... |
| title_full_unstemmed | Oxford textbook of palliative care for children ed. by Ann Goldman ... |
| title_short | Oxford textbook of palliative care for children |
| title_sort | oxford textbook of palliative care for children |
| topic | Enfants malades en phase terminale - Soins Soins palliatifs Terminally ill children Care Palliative treatment Palliative Care Terminal Care Attitude to Death Child Cross-Cultural Comparison Family Pastoral Care Religious Philosophies Kind (DE-588)4030550-8 gnd Palliativtherapie (DE-588)4115490-3 gnd |
| topic_facet | Enfants malades en phase terminale - Soins Soins palliatifs Terminally ill children Care Palliative treatment Palliative Care Terminal Care Attitude to Death Child Cross-Cultural Comparison Family Pastoral Care Religious Philosophies Kind Palliativtherapie |
| url | http://www.loc.gov/catdir/toc/ecip0518/2005023371.html http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014869489&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014869489&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT goldmanann oxfordtextbookofpalliativecareforchildren AT goldmanann palliativecareforchildren |