Genetic information values and rights: the morality of presymptomatic genetic testing
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Abschlussarbeit Buch |
| Sprache: | English |
| Veröffentlicht: |
Göteborg
Acta Univ. Gothoburgensis
2005
|
| Schriftenreihe: | Acta Universitatis Gothoburgensis
Acta philosophica Gothoburgensia ; 18 |
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | 459 S. |
| ISBN: | 9173465348 |
Internformat
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| 245 | 1 | 0 | |a Genetic information values and rights |b the morality of presymptomatic genetic testing |c Niklas Juth |
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| 490 | 1 | |a Acta Universitatis Gothoburgensis : Acta philosophica Gothoburgensia |v 18 | |
| 502 | |a Zugl.: Göteborg, Univ., Diss., 2005 | ||
| 650 | 4 | |a Chromosomes humains - Anomalies - Diagnostic - Aspect moral | |
| 650 | 4 | |a Conseil génétique - Aspect moral | |
| 650 | 4 | |a Génétique médicale - Aspect moral | |
| 650 | 4 | |a Procréation médicalement assistée - Aspect moral | |
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Genetic counseling |x Moral and ethical aspects | |
| 650 | 4 | |a Human chromosome abnormalities |x Diagnosis |x Moral and ethical aspects | |
| 650 | 4 | |a Human reproductive technology |x Moral and ethical aspects | |
| 650 | 4 | |a Medical genetics |x Moral and ethical aspects | |
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Datensatz im Suchindex
| _version_ | 1811034656375570432 |
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| adam_text |
Contents
Chapter I: Introduction 1
1. Background 1
2. Questions and purpose 2
3. Method 10
4. Genetics 16
4.1 Some basic genetic terminology 17
4.2 The possibilities of genetics 25
4.3 The moral (ir)relevance of genetic information 31
5. The plan of the book 33
Chapter II: Values in Presymptomatic Genetic Testing and Genetic Counselling
36
1. Introduction 36
2. The value of presymptomatic genetic testing 38
2.1 Health related well being 42
2.2 Psychological well being 45
2.2.1 Positive values 45
2.2.2 Negative values 47
2.3 Autonomy 52
2.3.1 Positive values 58
2.3.2 Negative values 61
2.4 Concluding remarks 66
3. The value of genetic counselling 72
3.1 The history of genetic counselling 74
3.2 The nature and goals of genetic counselling 75
3.3 The ethos of genetic counselling 79
3.3.1 Voluntariness 80
3.3.2 Equal access 82
3.3.3 Attention to psychosocial and affective dimensions 84
3.3.4 Confidentiality and protection of privacy 85
3.3.5 Non directiveness 85
3.4 Two practical problems of autonomy in genetic counselling 97
3.4.1 Autonomy versus well being 97
3.4.2 Autonomy versus autonomy 100
3.5 Concluding remarks on the value of genetic counselling 108
4. Well being 110
4.1 Theories of well being Ill
4.1.1 Hedonism 112
4.1.2 Preferentialism 113
4.1.3 Objective list theories 115
4.1.4 Subjective well being 116
4.2 Norms of well being 119
5. Conclusions 121
Chapter III: Autonomy 123
1. Introduction 123
2. A conception of autonomy 125
2.1 Minimalistic definition 127
2.2 Authenticity 129
2.2.1 What authenticity is not 132
2.2.2 What authenticity is 142
2.2.3 What authenticity is affected by 147
2.2.4 The regress revisited 149
2.3 Decision competence 151
2.3.1 What decision competence is 152
2.3.2 What decision competence is affected by 155
2.4 Efficiency 156
2.4.1 What efficiency is 157
2.4.2 What efficiency is affected by 160
2.5 What autonomy is not 162
2.6 Autonomy's relatives 164
2.6.1 Platitudes of autonomy 165
2.6.2 Fruits of autonomy 171
3. Ideals of autonomy 173
3.1 Autonomy as a positive value 175
3.1.1 The ideal of self realization 176
3.1.2 The ideal of capacity 180
3.2 From value to morality 181
3.2.1 The norms of the value 182
3.2.2 Autonomy and time 185
3.2.3 Comparisons of autonomy 187
3.3 Autonomy as a right 197
3.3.1 Justifications of autonomy as aright 204
4. Concluding remarks 208
Chapter IV: The Individual's Right to Genetic Information 213
1. Introduction 213
1.1 The concept of a right 214
1.1.1 The impEcations of rights 215
1.1.2 The justifications of rights 223
1.2 The interpretations of die individual's right 226
2. Negative rights 232
2.1 Basic rights 239
2.2 Rights derived from basic rights 243
2.2.1 Libertarianism 243
2.2.2 Kantian autonomy 248
2.3 Rights derived from values 252
2.3.1 Consequences of autonomy 252
2.3.2 Consequences of well being 259
2.4 Casuistic arguments 267
2.5 Concluding remarks 272
3. Positive rights 274
3.1 Basic rights 277
3.1.1 Rights derived from basic rights 278
3.2 Rights derived from values 280
3.2.1 The right to access 283
3.2.2 The right to receive 285
4. Conclusions 286
Chapter V: The Individual's Right to Ignorance 289
1. Introduction 289
2. Are there any rights not to know? 290
2.1 Negative and positive rights 292
3. A duty to know 295
3.1 Kantian arguments of autonomy 298
3.1.1 A duty towards oneself 299
3.1.2 A duty to do one's (Kantian) duty 309
3.2 Duties towards others: Arguments of non harm 319
4. Conclusions 329
Chapter VI: The Relatives' Value of and Right to Genetic Information 331
1. Introduction 331
2. Requiring the consent of relatives 336
2.1 Informed consent 338
2.2 Confidentiality and privacy 340
2.3 Respecting autonomy 347
2.4 Consequential arguments 351
2.5 The problem of arbitrariness 354
3. Disclosure to relatives 358
3.1 Well being and autonomy 359
3.1.1 Theoretical solution 359
3.1.2 Practical solutions 362
3.2 Special obligations due to special relations 368
3.2.1 Special obligations due to genetic bonds 369
3.2.2 Special obligations due to social bonds 373
4. Conclusions 376
Chapter VII: Third Parties' Right to Genetic Information: Insurance Companies
378
1. Introduction 378
1.1 Empirical suppositions 382
1.3 Things to come 383
2. Consequentialism 384
2.1 Negative consequences of absence of regulation: uninsured
population 384
2.2 Negative consequences of total regulation: adverse selection 385
2.3 Negative consequences of partial regulation: deterrence 391
2.4 Consequentialist arguments: Summary 392
3. Autonomy 393
3.1 Mill's ideal of autonomy 393
3.2 The ideal of self realization 395
3.3 Autonomy: Summary 398
4. Privacy 398
4.1 Is there anything special about genetic information? 399
4.2 Privacy: Summary 402
5. Justice 403
5.1 Desert and equality 406
5.2 Voluntariness and rights 410
5.2.1 Actuarial fairness 410
5.2.2 Iibertarianism 413
5.3 A compromise 417
6. Other third parties 422
6.1 Employers 422
6.2 Researchers 427
7. Conclusions 431
Chapter VIII: Summary 433
Bibliography 438
Index 450 |
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| indexdate | 2024-09-24T00:20:37Z |
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| spelling | Juth, Niklas 1973- Verfasser (DE-588)173674844 aut Genetic information values and rights the morality of presymptomatic genetic testing Niklas Juth Göteborg Acta Univ. Gothoburgensis 2005 459 S. txt rdacontent n rdamedia nc rdacarrier Acta Universitatis Gothoburgensis : Acta philosophica Gothoburgensia 18 Zugl.: Göteborg, Univ., Diss., 2005 Chromosomes humains - Anomalies - Diagnostic - Aspect moral Conseil génétique - Aspect moral Génétique médicale - Aspect moral Procréation médicalement assistée - Aspect moral Ethik Genetic counseling Moral and ethical aspects Human chromosome abnormalities Diagnosis Moral and ethical aspects Human reproductive technology Moral and ethical aspects Medical genetics Moral and ethical aspects Genanalyse (DE-588)4200230-8 gnd rswk-swf Ethik (DE-588)4015602-3 gnd rswk-swf (DE-588)4113937-9 Hochschulschrift gnd-content Genanalyse (DE-588)4200230-8 s Ethik (DE-588)4015602-3 s DE-604 Acta Universitatis Gothoburgensis Acta philosophica Gothoburgensia ; 18 (DE-604)BV000651194 18 HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=013152324&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Juth, Niklas 1973- Genetic information values and rights the morality of presymptomatic genetic testing Acta Universitatis Gothoburgensis Chromosomes humains - Anomalies - Diagnostic - Aspect moral Conseil génétique - Aspect moral Génétique médicale - Aspect moral Procréation médicalement assistée - Aspect moral Ethik Genetic counseling Moral and ethical aspects Human chromosome abnormalities Diagnosis Moral and ethical aspects Human reproductive technology Moral and ethical aspects Medical genetics Moral and ethical aspects Genanalyse (DE-588)4200230-8 gnd Ethik (DE-588)4015602-3 gnd |
| subject_GND | (DE-588)4200230-8 (DE-588)4015602-3 (DE-588)4113937-9 |
| title | Genetic information values and rights the morality of presymptomatic genetic testing |
| title_auth | Genetic information values and rights the morality of presymptomatic genetic testing |
| title_exact_search | Genetic information values and rights the morality of presymptomatic genetic testing |
| title_full | Genetic information values and rights the morality of presymptomatic genetic testing Niklas Juth |
| title_fullStr | Genetic information values and rights the morality of presymptomatic genetic testing Niklas Juth |
| title_full_unstemmed | Genetic information values and rights the morality of presymptomatic genetic testing Niklas Juth |
| title_short | Genetic information values and rights |
| title_sort | genetic information values and rights the morality of presymptomatic genetic testing |
| title_sub | the morality of presymptomatic genetic testing |
| topic | Chromosomes humains - Anomalies - Diagnostic - Aspect moral Conseil génétique - Aspect moral Génétique médicale - Aspect moral Procréation médicalement assistée - Aspect moral Ethik Genetic counseling Moral and ethical aspects Human chromosome abnormalities Diagnosis Moral and ethical aspects Human reproductive technology Moral and ethical aspects Medical genetics Moral and ethical aspects Genanalyse (DE-588)4200230-8 gnd Ethik (DE-588)4015602-3 gnd |
| topic_facet | Chromosomes humains - Anomalies - Diagnostic - Aspect moral Conseil génétique - Aspect moral Génétique médicale - Aspect moral Procréation médicalement assistée - Aspect moral Ethik Genetic counseling Moral and ethical aspects Human chromosome abnormalities Diagnosis Moral and ethical aspects Human reproductive technology Moral and ethical aspects Medical genetics Moral and ethical aspects Genanalyse Hochschulschrift |
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