Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials :: proceedings of a workshop /
Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. Although progress in increasing minority participation in clinical trials has occurred, participation rates do not fully represent the...
Gespeichert in:
| Körperschaften: | , |
|---|---|
| Format: | Elektronisch Tagungsbericht E-Book |
| Sprache: | English |
| Veröffentlicht: |
Washington, DC :
The National Academies Press,
[2016]
|
| Schriftenreihe: | Online access: NCBI NCBI Bookshelf.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. Although progress in increasing minority participation in clinical trials has occurred, participation rates do not fully represent the overall population of minorities in the United States. This underrepresentation threatens the health of both these populations and the general population, since greater minority representation could reveal factors that affect health in all populations. Federal legislation has sought to increase the representation of minorities and women in clinical trials, but legislation by itself has not been sufficient to overcome the many barriers to greater participation. Only much broader changes will bring about the meaningful participation of all population groups in the clinical research needed to improve health. To examine the barriers to participation in clinical trials and ways of overcoming those barriers, the National Academies of Sciences, Engineering, and Medicine held a workshop in April 2015. This publication summarizes the presentations and discussions from the workshop. |
| Beschreibung: | 1 online resource (1 PDF file (xiii, 69 pages)) : illustrations |
| Bibliographie: | Includes bibliographical references. |
| ISBN: | 9780309443586 030944358X |
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| 245 | 1 | 0 | |a Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : |b proceedings of a workshop / |c Karen M. Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine. |
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| 520 | 3 | |a Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. Although progress in increasing minority participation in clinical trials has occurred, participation rates do not fully represent the overall population of minorities in the United States. This underrepresentation threatens the health of both these populations and the general population, since greater minority representation could reveal factors that affect health in all populations. Federal legislation has sought to increase the representation of minorities and women in clinical trials, but legislation by itself has not been sufficient to overcome the many barriers to greater participation. Only much broader changes will bring about the meaningful participation of all population groups in the clinical research needed to improve health. To examine the barriers to participation in clinical trials and ways of overcoming those barriers, the National Academies of Sciences, Engineering, and Medicine held a workshop in April 2015. This publication summarizes the presentations and discussions from the workshop. | |
| 536 | |a This activity was supported by the Aetna Foundation, Health Resources and Services Administration, Kaiser Permanente, The Kresge Foundation, Merck & Co., Inc., Methodist Health Ministries, and Office of Minority Health, U.S. Food and Drug Administration. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project. | ||
| 588 | 0 | |a Online resource; title from PDF title page (viewed October 18, 2016). | |
| 505 | 0 | |a Introduction and highlights of the workshop -- Historical perspectives and context -- Scientific issues: clinically meaningful inclusion -- Recruitment and retention issues: patient, provider, institutional, and system barriers -- Potential best practices and policy options. | |
| 650 | 0 | |a Clinical trials. |0 http://id.loc.gov/authorities/subjects/sh85027069 | |
| 650 | 0 | |a Discrimination in medical care. |0 http://id.loc.gov/authorities/subjects/sh85038396 | |
| 650 | 0 | |a Health services accessibility. |0 http://id.loc.gov/authorities/subjects/sh92006496 | |
| 650 | 0 | |a Ethnic groups. |0 http://id.loc.gov/authorities/subjects/sh85045172 | |
| 650 | 0 | |a Minorities. |0 http://id.loc.gov/authorities/subjects/sh85085792 | |
| 650 | 0 | |a Women. |0 http://id.loc.gov/authorities/subjects/sh85147274 | |
| 650 | 1 | 2 | |a Clinical Trials as Topic |
| 650 | 2 | |a Health Services Accessibility |0 https://id.nlm.nih.gov/mesh/D006297 | |
| 650 | 2 | 2 | |a Communication Barriers |
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| 650 | 6 | |a Études cliniques. | |
| 650 | 6 | |a Discrimination dans les soins médicaux. | |
| 650 | 6 | |a Services de santé |x Accessibilité. | |
| 650 | 6 | |a Groupes ethniques. | |
| 650 | 6 | |a Minorités. | |
| 650 | 6 | |a Sélection de patients. | |
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| 700 | 1 | |a Olson, Steve, |d 1956- |e rapporteur. |1 https://id.oclc.org/worldcat/entity/E39PBJpV6yX9jFKMQMYFvVkhpP | |
| 710 | 2 | |a National Academies of Sciences, Engineering, and Medicine (U.S.). |b Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities. |0 http://id.loc.gov/authorities/names/n2016187592 | |
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| 711 | 2 | |a Strategies for Ensuring Diversity, Inclusion, and Meaningful Participation in Clinical Trials (Workshop) |d (2015 : |c Washington, D.C.) |0 http://id.loc.gov/authorities/names/no2016116612 | |
| 776 | 0 | 8 | |i Print version: |a Anderson, Karen M. |t Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials. |d Washington, D.C. : National Academies Press, 2016 |
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| author_corporate | National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities Strategies for Ensuring Diversity, Inclusion, and Meaningful Participation in Clinical Trials (Workshop) |
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| author_facet | National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities Strategies for Ensuring Diversity, Inclusion, and Meaningful Participation in Clinical Trials (Workshop) |
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| contents | Introduction and highlights of the workshop -- Historical perspectives and context -- Scientific issues: clinically meaningful inclusion -- Recruitment and retention issues: patient, provider, institutional, and system barriers -- Potential best practices and policy options. |
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Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine.</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Washington, DC :</subfield><subfield code="b">The National Academies Press,</subfield><subfield code="c">[2016]</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 online resource (1 PDF file (xiii, 69 pages)) :</subfield><subfield code="b">illustrations</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="a">text</subfield><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="a">computer</subfield><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="a">online resource</subfield><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="504" ind1=" " ind2=" "><subfield code="a">Includes bibliographical references.</subfield></datafield><datafield tag="520" ind1="3" ind2=" "><subfield code="a">Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. 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| genre | Congress proceedings (reports) aat Conference papers and proceedings fast Conference papers and proceedings. lcgft http://id.loc.gov/authorities/genreForms/gf2014026068 Actes de congrès. rvmgf |
| genre_facet | Congress proceedings (reports) Conference papers and proceedings Conference papers and proceedings. Actes de congrès. |
| geographic | United States |
| geographic_facet | United States |
| id | ZDB-4-EBA-ocn957527254 |
| illustrated | Illustrated |
| indexdate | 2024-11-27T13:27:22Z |
| institution | BVB |
| institution_GND | http://id.loc.gov/authorities/names/n2016187592 http://id.loc.gov/authorities/names/no2015135192 http://id.loc.gov/authorities/names/no2016116612 |
| isbn | 9780309443586 030944358X |
| language | English |
| oclc_num | 957527254 |
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| physical | 1 online resource (1 PDF file (xiii, 69 pages)) : illustrations |
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| publishDate | 2016 |
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| publisher | The National Academies Press, |
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| spelling | Anderson, Karen M., rapporteur. http://id.loc.gov/authorities/names/no99066780 Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / Karen M. Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine. Washington, DC : The National Academies Press, [2016] 1 online resource (1 PDF file (xiii, 69 pages)) : illustrations text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references. Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. Although progress in increasing minority participation in clinical trials has occurred, participation rates do not fully represent the overall population of minorities in the United States. This underrepresentation threatens the health of both these populations and the general population, since greater minority representation could reveal factors that affect health in all populations. Federal legislation has sought to increase the representation of minorities and women in clinical trials, but legislation by itself has not been sufficient to overcome the many barriers to greater participation. Only much broader changes will bring about the meaningful participation of all population groups in the clinical research needed to improve health. To examine the barriers to participation in clinical trials and ways of overcoming those barriers, the National Academies of Sciences, Engineering, and Medicine held a workshop in April 2015. This publication summarizes the presentations and discussions from the workshop. This activity was supported by the Aetna Foundation, Health Resources and Services Administration, Kaiser Permanente, The Kresge Foundation, Merck & Co., Inc., Methodist Health Ministries, and Office of Minority Health, U.S. Food and Drug Administration. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project. Online resource; title from PDF title page (viewed October 18, 2016). Introduction and highlights of the workshop -- Historical perspectives and context -- Scientific issues: clinically meaningful inclusion -- Recruitment and retention issues: patient, provider, institutional, and system barriers -- Potential best practices and policy options. Clinical trials. http://id.loc.gov/authorities/subjects/sh85027069 Discrimination in medical care. http://id.loc.gov/authorities/subjects/sh85038396 Health services accessibility. http://id.loc.gov/authorities/subjects/sh92006496 Ethnic groups. http://id.loc.gov/authorities/subjects/sh85045172 Minorities. http://id.loc.gov/authorities/subjects/sh85085792 Women. http://id.loc.gov/authorities/subjects/sh85147274 Clinical Trials as Topic Health Services Accessibility https://id.nlm.nih.gov/mesh/D006297 Communication Barriers Ethnicity Healthcare Disparities Minority Groups Patient Selection Women United States Études cliniques. Discrimination dans les soins médicaux. Services de santé Accessibilité. Groupes ethniques. Minorités. Sélection de patients. Femmes. ethnic groups. aat minorities. aat women (female humans) aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Women fast Minorities fast Ethnic groups fast Clinical trials fast Discrimination in medical care fast Health services accessibility fast Congress proceedings (reports) aat Conference papers and proceedings fast Conference papers and proceedings. lcgft http://id.loc.gov/authorities/genreForms/gf2014026068 Actes de congrès. rvmgf Olson, Steve, 1956- rapporteur. https://id.oclc.org/worldcat/entity/E39PBJpV6yX9jFKMQMYFvVkhpP National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities. http://id.loc.gov/authorities/names/n2016187592 National Academies of Sciences, Engineering, and Medicine (U.S.), issuing body. http://id.loc.gov/authorities/names/no2015135192 Strategies for Ensuring Diversity, Inclusion, and Meaningful Participation in Clinical Trials (Workshop) (2015 : Washington, D.C.) http://id.loc.gov/authorities/names/no2016116612 Print version: Anderson, Karen M. Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials. Washington, D.C. : National Academies Press, 2016 Online access: NCBI NCBI Bookshelf. FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1355685 Volltext |
| spellingShingle | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / Online access: NCBI NCBI Bookshelf. Introduction and highlights of the workshop -- Historical perspectives and context -- Scientific issues: clinically meaningful inclusion -- Recruitment and retention issues: patient, provider, institutional, and system barriers -- Potential best practices and policy options. Clinical trials. http://id.loc.gov/authorities/subjects/sh85027069 Discrimination in medical care. http://id.loc.gov/authorities/subjects/sh85038396 Health services accessibility. http://id.loc.gov/authorities/subjects/sh92006496 Ethnic groups. http://id.loc.gov/authorities/subjects/sh85045172 Minorities. http://id.loc.gov/authorities/subjects/sh85085792 Women. http://id.loc.gov/authorities/subjects/sh85147274 Clinical Trials as Topic Health Services Accessibility https://id.nlm.nih.gov/mesh/D006297 Communication Barriers Ethnicity Healthcare Disparities Minority Groups Patient Selection Women Études cliniques. Discrimination dans les soins médicaux. Services de santé Accessibilité. Groupes ethniques. Minorités. Sélection de patients. Femmes. ethnic groups. aat minorities. aat women (female humans) aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Women fast Minorities fast Ethnic groups fast Clinical trials fast Discrimination in medical care fast Health services accessibility fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85027069 http://id.loc.gov/authorities/subjects/sh85038396 http://id.loc.gov/authorities/subjects/sh92006496 http://id.loc.gov/authorities/subjects/sh85045172 http://id.loc.gov/authorities/subjects/sh85085792 http://id.loc.gov/authorities/subjects/sh85147274 https://id.nlm.nih.gov/mesh/D006297 http://id.loc.gov/authorities/genreForms/gf2014026068 |
| title | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / |
| title_auth | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / |
| title_exact_search | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / |
| title_full | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / Karen M. Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine. |
| title_fullStr | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / Karen M. Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine. |
| title_full_unstemmed | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : proceedings of a workshop / Karen M. Anderson and Steve Olson, rapporteurs ; Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities, Board on Population Health and Public Health Practice, Health and Medicine Division ; the National Academies of Sciences, Engineering, Medicine. |
| title_short | Strategies for ensuring diversity, inclusion, and meaningful participation in clinical trials : |
| title_sort | strategies for ensuring diversity inclusion and meaningful participation in clinical trials proceedings of a workshop |
| title_sub | proceedings of a workshop / |
| topic | Clinical trials. http://id.loc.gov/authorities/subjects/sh85027069 Discrimination in medical care. http://id.loc.gov/authorities/subjects/sh85038396 Health services accessibility. http://id.loc.gov/authorities/subjects/sh92006496 Ethnic groups. http://id.loc.gov/authorities/subjects/sh85045172 Minorities. http://id.loc.gov/authorities/subjects/sh85085792 Women. http://id.loc.gov/authorities/subjects/sh85147274 Clinical Trials as Topic Health Services Accessibility https://id.nlm.nih.gov/mesh/D006297 Communication Barriers Ethnicity Healthcare Disparities Minority Groups Patient Selection Women Études cliniques. Discrimination dans les soins médicaux. Services de santé Accessibilité. Groupes ethniques. Minorités. Sélection de patients. Femmes. ethnic groups. aat minorities. aat women (female humans) aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Women fast Minorities fast Ethnic groups fast Clinical trials fast Discrimination in medical care fast Health services accessibility fast |
| topic_facet | Clinical trials. Discrimination in medical care. Health services accessibility. Ethnic groups. Minorities. Women. Clinical Trials as Topic Health Services Accessibility Communication Barriers Ethnicity Healthcare Disparities Minority Groups Patient Selection Women United States Études cliniques. Discrimination dans les soins médicaux. Services de santé Accessibilité. Groupes ethniques. Minorités. Sélection de patients. Femmes. ethnic groups. minorities. women (female humans) HEALTH & FITNESS Diseases General. MEDICAL Clinical Medicine. MEDICAL Diseases. MEDICAL Evidence-Based Medicine. MEDICAL Internal Medicine. Minorities Ethnic groups Clinical trials Discrimination in medical care Health services accessibility Congress proceedings (reports) Conference papers and proceedings Conference papers and proceedings. Actes de congrès. |
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