Testing baby :: the transformation of newborn screening, parenting, and policy making /
Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
New Brunswick, NJ :
Rutgers University Press,
[2011]
|
| Schriftenreihe: | Critical issues in health and medicine.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. |
| Beschreibung: | 1 online resource (xi, 272 pages) |
| Format: | Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 9780813552026 0813552028 1280492392 9781280492396 9786613587626 6613587621 |
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| 100 | 1 | |a Grob, Rachel, |d 1966- | |
| 245 | 1 | 0 | |a Testing baby : |b the transformation of newborn screening, parenting, and policy making / |c Rachel Grob. |
| 264 | 1 | |a New Brunswick, NJ : |b Rutgers University Press, |c [2011] | |
| 264 | 4 | |c ©2011 | |
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| 490 | 1 | |a Critical issues in health and medicine | |
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? | |
| 520 | |a Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. | ||
| 506 | |3 Use copy |f Restrictions unspecified |2 star |5 MiAaHDL | ||
| 533 | |a Electronic reproduction. |b [Place of publication not identified] : |c HathiTrust Digital Library, |d 2011. |5 MiAaHDL | ||
| 538 | |a Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. |u http://purl.oclc.org/DLF/benchrepro0212 |5 MiAaHDL | ||
| 583 | 1 | |a digitized |c 2011 |h HathiTrust Digital Library |l committed to preserve |2 pda |5 MiAaHDL | |
| 546 | |a English. | ||
| 610 | 2 | 7 | |a Umschulungswerkstätten für Siedler und Auswanderer |g Bitterfeld |2 gnd |
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| 650 | 0 | |a Newborn screening. |0 http://id.loc.gov/authorities/subjects/sh2021001272 | |
| 650 | 0 | |a Newborn infants. |0 http://id.loc.gov/authorities/subjects/sh85066048 | |
| 650 | 0 | |a Parents. |0 http://id.loc.gov/authorities/subjects/sh85098016 | |
| 650 | 0 | |a Medical policy. |0 http://id.loc.gov/authorities/subjects/sh85083002 | |
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| 650 | 2 | 2 | |a Parents |
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| 650 | 6 | |a Dépistage (Médecine) | |
| 650 | 6 | |a Dépistage néonatal. | |
| 650 | 6 | |a Nouveau-nés. | |
| 650 | 6 | |a Parents. | |
| 650 | 6 | |a Politique sanitaire. | |
| 650 | 7 | |a broader terms. |2 aat | |
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| 650 | 7 | |a Medical policy |2 fast | |
| 650 | 7 | |a Medical screening |2 fast | |
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| 758 | |i has work: |a Testing baby (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGHBj399G9vkMMxCt7kHcq |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |a Grob, Rachel, 1966- |t Testing baby. |d New Brunswick, NJ : Rutgers University Press, ©2011 |w (DLC) 2010049959 |
| 830 | 0 | |a Critical issues in health and medicine. | |
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| contents | Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? |
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| discipline | Soziologie |
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| id | ZDB-4-EBA-ocn785782340 |
| illustrated | Not Illustrated |
| indexdate | 2024-11-27T13:18:20Z |
| institution | BVB |
| isbn | 9780813552026 0813552028 1280492392 9781280492396 9786613587626 6613587621 |
| language | English |
| oclc_num | 785782340 |
| open_access_boolean | |
| owner | MAIN DE-863 DE-BY-FWS |
| owner_facet | MAIN DE-863 DE-BY-FWS |
| physical | 1 online resource (xi, 272 pages) |
| psigel | ZDB-4-EBA |
| publishDate | 2011 |
| publishDateSearch | 2011 |
| publishDateSort | 2011 |
| publisher | Rutgers University Press, |
| record_format | marc |
| series | Critical issues in health and medicine. |
| series2 | Critical issues in health and medicine |
| spelling | Grob, Rachel, 1966- Testing baby : the transformation of newborn screening, parenting, and policy making / Rachel Grob. New Brunswick, NJ : Rutgers University Press, [2011] ©2011 1 online resource (xi, 272 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier text file PDF rda Critical issues in health and medicine Includes bibliographical references and index. Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives. Use copy Restrictions unspecified star MiAaHDL Electronic reproduction. [Place of publication not identified] : HathiTrust Digital Library, 2011. MiAaHDL Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. http://purl.oclc.org/DLF/benchrepro0212 MiAaHDL digitized 2011 HathiTrust Digital Library committed to preserve pda MiAaHDL English. Umschulungswerkstätten für Siedler und Auswanderer Bitterfeld gnd Newborn infants Diseases Diagnosis. http://id.loc.gov/authorities/subjects/sh85066053 Medical screening. http://id.loc.gov/authorities/subjects/sh85083024 Newborn screening. http://id.loc.gov/authorities/subjects/sh2021001272 Newborn infants. http://id.loc.gov/authorities/subjects/sh85066048 Parents. http://id.loc.gov/authorities/subjects/sh85098016 Medical policy. http://id.loc.gov/authorities/subjects/sh85083002 Neonatal Screening Infant, Newborn Parents Health Policy Nouveau-nés Maladies Diagnostic. Dépistage (Médecine) Dépistage néonatal. Nouveau-nés. Parents. Politique sanitaire. broader terms. aat parents. aat MEDICAL Public Health. bisacsh Parents fast Newborn screening fast Newborn infants fast Medical policy fast Medical screening fast Newborn infants Diseases Diagnosis fast Neugeborenenkrankheit gnd http://d-nb.info/gnd/4041779-7 Reihenuntersuchung gnd http://d-nb.info/gnd/4277596-6 Gesundheitspolitik gnd http://d-nb.info/gnd/4113743-7 Eltern gnd http://d-nb.info/gnd/4014516-5 has work: Testing baby (Text) https://id.oclc.org/worldcat/entity/E39PCGHBj399G9vkMMxCt7kHcq https://id.oclc.org/worldcat/ontology/hasWork Print version: Grob, Rachel, 1966- Testing baby. New Brunswick, NJ : Rutgers University Press, ©2011 (DLC) 2010049959 Critical issues in health and medicine. FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=433667 Volltext |
| spellingShingle | Grob, Rachel, 1966- Testing baby : the transformation of newborn screening, parenting, and policy making / Critical issues in health and medicine. Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? Umschulungswerkstätten für Siedler und Auswanderer Bitterfeld gnd Newborn infants Diseases Diagnosis. http://id.loc.gov/authorities/subjects/sh85066053 Medical screening. http://id.loc.gov/authorities/subjects/sh85083024 Newborn screening. http://id.loc.gov/authorities/subjects/sh2021001272 Newborn infants. http://id.loc.gov/authorities/subjects/sh85066048 Parents. http://id.loc.gov/authorities/subjects/sh85098016 Medical policy. http://id.loc.gov/authorities/subjects/sh85083002 Neonatal Screening Infant, Newborn Parents Health Policy Nouveau-nés Maladies Diagnostic. Dépistage (Médecine) Dépistage néonatal. Nouveau-nés. Parents. Politique sanitaire. broader terms. aat parents. aat MEDICAL Public Health. bisacsh Parents fast Newborn screening fast Newborn infants fast Medical policy fast Medical screening fast Newborn infants Diseases Diagnosis fast Neugeborenenkrankheit gnd http://d-nb.info/gnd/4041779-7 Reihenuntersuchung gnd http://d-nb.info/gnd/4277596-6 Gesundheitspolitik gnd http://d-nb.info/gnd/4113743-7 Eltern gnd http://d-nb.info/gnd/4014516-5 |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85066053 http://id.loc.gov/authorities/subjects/sh85083024 http://id.loc.gov/authorities/subjects/sh2021001272 http://id.loc.gov/authorities/subjects/sh85066048 http://id.loc.gov/authorities/subjects/sh85098016 http://id.loc.gov/authorities/subjects/sh85083002 http://d-nb.info/gnd/4041779-7 http://d-nb.info/gnd/4277596-6 http://d-nb.info/gnd/4113743-7 http://d-nb.info/gnd/4014516-5 |
| title | Testing baby : the transformation of newborn screening, parenting, and policy making / |
| title_auth | Testing baby : the transformation of newborn screening, parenting, and policy making / |
| title_exact_search | Testing baby : the transformation of newborn screening, parenting, and policy making / |
| title_full | Testing baby : the transformation of newborn screening, parenting, and policy making / Rachel Grob. |
| title_fullStr | Testing baby : the transformation of newborn screening, parenting, and policy making / Rachel Grob. |
| title_full_unstemmed | Testing baby : the transformation of newborn screening, parenting, and policy making / Rachel Grob. |
| title_short | Testing baby : |
| title_sort | testing baby the transformation of newborn screening parenting and policy making |
| title_sub | the transformation of newborn screening, parenting, and policy making / |
| topic | Umschulungswerkstätten für Siedler und Auswanderer Bitterfeld gnd Newborn infants Diseases Diagnosis. http://id.loc.gov/authorities/subjects/sh85066053 Medical screening. http://id.loc.gov/authorities/subjects/sh85083024 Newborn screening. http://id.loc.gov/authorities/subjects/sh2021001272 Newborn infants. http://id.loc.gov/authorities/subjects/sh85066048 Parents. http://id.loc.gov/authorities/subjects/sh85098016 Medical policy. http://id.loc.gov/authorities/subjects/sh85083002 Neonatal Screening Infant, Newborn Parents Health Policy Nouveau-nés Maladies Diagnostic. Dépistage (Médecine) Dépistage néonatal. Nouveau-nés. Parents. Politique sanitaire. broader terms. aat parents. aat MEDICAL Public Health. bisacsh Parents fast Newborn screening fast Newborn infants fast Medical policy fast Medical screening fast Newborn infants Diseases Diagnosis fast Neugeborenenkrankheit gnd http://d-nb.info/gnd/4041779-7 Reihenuntersuchung gnd http://d-nb.info/gnd/4277596-6 Gesundheitspolitik gnd http://d-nb.info/gnd/4113743-7 Eltern gnd http://d-nb.info/gnd/4014516-5 |
| topic_facet | Umschulungswerkstätten für Siedler und Auswanderer Bitterfeld Newborn infants Diseases Diagnosis. Medical screening. Newborn screening. Newborn infants. Parents. Medical policy. Neonatal Screening Infant, Newborn Parents Health Policy Nouveau-nés Maladies Diagnostic. Dépistage (Médecine) Dépistage néonatal. Nouveau-nés. Politique sanitaire. broader terms. parents. MEDICAL Public Health. Newborn screening Newborn infants Medical policy Medical screening Newborn infants Diseases Diagnosis Neugeborenenkrankheit Reihenuntersuchung Gesundheitspolitik Eltern |
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