Crucible of the Incurable: Facing ALS
Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred...
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| Main Author: | |
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| Format: | Electronic eBook |
| Language: | English |
| Published: |
Ithaca, NY
Cornell University Press
[2024]
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| Series: | Expertise: Cultures and Technologies of Knowledge
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| Subjects: | |
| Online Access: | DE-473 Volltext |
| Summary: | Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace |
| Item Description: | Description based on online resource; title from PDF title page (publisher's Web site, viewed 20. Nov 2024) |
| Physical Description: | 1 Online-Ressource (248 Seiten) |
| ISBN: | 9781501778346 |
| DOI: | 10.1515/9781501778346 |
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| spelling | Stavrianakis, Anthony Verfasser aut Crucible of the Incurable Facing ALS Anthony Stavrianakis Ithaca, NY Cornell University Press [2024] 2024 1 Online-Ressource (248 Seiten) txt rdacontent c rdamedia cr rdacarrier Expertise: Cultures and Technologies of Knowledge Description based on online resource; title from PDF title page (publisher's Web site, viewed 20. Nov 2024) Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace In English ANTHROPOLOGY. MEDICINE & MEDICAL ISSUES. SOCIOLOGY & SOCIAL SCIENCE. SOCIAL SCIENCE / Anthropology / Cultural & Social bisacsh Amyotrophic lateral sclerosis Patients Care Amyotrophic lateral sclerosis Patients Social conditions Amyotrophic lateral sclerosis Psychological aspects https://doi.org/10.1515/9781501778346?locatt=mode:legacy Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Stavrianakis, Anthony Crucible of the Incurable Facing ALS ANTHROPOLOGY. MEDICINE & MEDICAL ISSUES. SOCIOLOGY & SOCIAL SCIENCE. SOCIAL SCIENCE / Anthropology / Cultural & Social bisacsh Amyotrophic lateral sclerosis Patients Care Amyotrophic lateral sclerosis Patients Social conditions Amyotrophic lateral sclerosis Psychological aspects |
| title | Crucible of the Incurable Facing ALS |
| title_auth | Crucible of the Incurable Facing ALS |
| title_exact_search | Crucible of the Incurable Facing ALS |
| title_full | Crucible of the Incurable Facing ALS Anthony Stavrianakis |
| title_fullStr | Crucible of the Incurable Facing ALS Anthony Stavrianakis |
| title_full_unstemmed | Crucible of the Incurable Facing ALS Anthony Stavrianakis |
| title_short | Crucible of the Incurable |
| title_sort | crucible of the incurable facing als |
| title_sub | Facing ALS |
| topic | ANTHROPOLOGY. MEDICINE & MEDICAL ISSUES. SOCIOLOGY & SOCIAL SCIENCE. SOCIAL SCIENCE / Anthropology / Cultural & Social bisacsh Amyotrophic lateral sclerosis Patients Care Amyotrophic lateral sclerosis Patients Social conditions Amyotrophic lateral sclerosis Psychological aspects |
| topic_facet | ANTHROPOLOGY. MEDICINE & MEDICAL ISSUES. SOCIOLOGY & SOCIAL SCIENCE. SOCIAL SCIENCE / Anthropology / Cultural & Social Amyotrophic lateral sclerosis Patients Care Amyotrophic lateral sclerosis Patients Social conditions Amyotrophic lateral sclerosis Psychological aspects |
| url | https://doi.org/10.1515/9781501778346?locatt=mode:legacy |
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