Embodied narratives: protecting identity interests through ethical governance of bioinformation
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to t...
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| Main Author: | |
|---|---|
| Format: | Electronic eBook |
| Language: | English |
| Published: |
Cambridge
Cambridge University Press
2022
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| Series: | Cambridge Bioethics and Law
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| Subjects: | |
| Online Access: | BSB01 UBG01 Volltext |
| Summary: | Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core |
| Item Description: | Open Access. - Title from publisher's bibliographic system (viewed on 05 Jul 2022) Attending to identity -- Mapping the landscape -- Narrative self-constitution -- Bioinformation in embodied identity narratives -- Encounters with bioinformation : three examples -- Locating identity interests -- Responsibilities for disclosure -- Identity in the governance landscape |
| Physical Description: | 1 Online-Ressource (xiv, 296 Seiten) |
| ISBN: | 9781108652599 |
| DOI: | 10.1017/9781108652599 |
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| id | DE-604.BV048476006 |
| illustrated | Not Illustrated |
| index_date | 2024-07-03T20:37:51Z |
| indexdate | 2024-07-10T09:39:10Z |
| institution | BVB |
| isbn | 9781108652599 |
| language | English |
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| spelling | Postan, Emily 1973- (DE-588)1253881596 aut Embodied narratives protecting identity interests through ethical governance of bioinformation Emily Postan Cambridge Cambridge University Press 2022 1 Online-Ressource (xiv, 296 Seiten) txt rdacontent c rdamedia cr rdacarrier Cambridge Bioethics and Law Open Access. - Title from publisher's bibliographic system (viewed on 05 Jul 2022) Attending to identity -- Mapping the landscape -- Narrative self-constitution -- Bioinformation in embodied identity narratives -- Encounters with bioinformation : three examples -- Locating identity interests -- Responsibilities for disclosure -- Identity in the governance landscape Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core Medical records / Access control / Psychological aspects Personal information management / Psychological aspects Patients / Psychology Identity (Psychology) Data privacy Medical records / Law and legislation Erscheint auch als Druck-Ausgabe 978-1-108-48374-2 https://doi.org/10.1017/9781108652599 Verlag kostenfrei Volltext |
| spellingShingle | Postan, Emily 1973- Embodied narratives protecting identity interests through ethical governance of bioinformation Medical records / Access control / Psychological aspects Personal information management / Psychological aspects Patients / Psychology Identity (Psychology) Data privacy Medical records / Law and legislation |
| title | Embodied narratives protecting identity interests through ethical governance of bioinformation |
| title_auth | Embodied narratives protecting identity interests through ethical governance of bioinformation |
| title_exact_search | Embodied narratives protecting identity interests through ethical governance of bioinformation |
| title_exact_search_txtP | Embodied narratives protecting identity interests through ethical governance of bioinformation |
| title_full | Embodied narratives protecting identity interests through ethical governance of bioinformation Emily Postan |
| title_fullStr | Embodied narratives protecting identity interests through ethical governance of bioinformation Emily Postan |
| title_full_unstemmed | Embodied narratives protecting identity interests through ethical governance of bioinformation Emily Postan |
| title_short | Embodied narratives |
| title_sort | embodied narratives protecting identity interests through ethical governance of bioinformation |
| title_sub | protecting identity interests through ethical governance of bioinformation |
| topic | Medical records / Access control / Psychological aspects Personal information management / Psychological aspects Patients / Psychology Identity (Psychology) Data privacy Medical records / Law and legislation |
| topic_facet | Medical records / Access control / Psychological aspects Personal information management / Psychological aspects Patients / Psychology Identity (Psychology) Data privacy Medical records / Law and legislation |
| url | https://doi.org/10.1017/9781108652599 |
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