Sharing linked data for health research: toward better decision making
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked...
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| Other Authors: | , , |
|---|---|
| Format: | Electronic eBook |
| Language: | English |
| Published: |
Cambridge, United Kingdom ; New York, NY
Cambridge University Press
2022
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| Series: | Cambridge bioethics and law
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| Subjects: | |
| Online Access: | BSB01 UBG01 URL des Erstveröffentlichers |
| Summary: | Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise |
| Item Description: | Title from publisher's bibliographic system (viewed on 10 Jun 2022) Introduction -- Research using linked data -- Individual, collective, and public interests -- Social licence -- Human rights -- Research ethics -- Law -- Existing practice and processes -- Better practice and processes |
| Physical Description: | 1 Online-Ressource (xxi, 252 Seiten) |
| ISBN: | 9781108675789 |
| DOI: | 10.1017/9781108675789 |
Staff View
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| 520 | |a Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise | ||
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| isbn | 9781108675789 |
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| spelling | Sharing linked data for health research toward better decision making edited by Carolyn Adams, Macquarie University Law School, Judy Allen, University of Western Australia, Felicity Flack, University of Western Australia Cambridge, United Kingdom ; New York, NY Cambridge University Press 2022 1 Online-Ressource (xxi, 252 Seiten) txt rdacontent c rdamedia cr rdacarrier Cambridge bioethics and law Title from publisher's bibliographic system (viewed on 10 Jun 2022) Introduction -- Research using linked data -- Individual, collective, and public interests -- Social licence -- Human rights -- Research ethics -- Law -- Existing practice and processes -- Better practice and processes Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise Medical records / Access control / English-speaking countries Data protection / Law and legislation / English-speaking countries Medicine / Research / Law and legislation / English-speaking countries Linked data / Government policy / English-speaking countries Adams, Carolyn 1962- (DE-588)1264173636 edt Flack, Felicity 1969- (DE-588)1265796637 edt Allen, Judy 1953- (DE-588)126425945X edt Erscheint auch als Druck-Ausgabe 978-1-108-42664-0 https://doi.org/10.1017/9781108675789 Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Sharing linked data for health research toward better decision making Medical records / Access control / English-speaking countries Data protection / Law and legislation / English-speaking countries Medicine / Research / Law and legislation / English-speaking countries Linked data / Government policy / English-speaking countries |
| title | Sharing linked data for health research toward better decision making |
| title_auth | Sharing linked data for health research toward better decision making |
| title_exact_search | Sharing linked data for health research toward better decision making |
| title_exact_search_txtP | Sharing linked data for health research toward better decision making |
| title_full | Sharing linked data for health research toward better decision making edited by Carolyn Adams, Macquarie University Law School, Judy Allen, University of Western Australia, Felicity Flack, University of Western Australia |
| title_fullStr | Sharing linked data for health research toward better decision making edited by Carolyn Adams, Macquarie University Law School, Judy Allen, University of Western Australia, Felicity Flack, University of Western Australia |
| title_full_unstemmed | Sharing linked data for health research toward better decision making edited by Carolyn Adams, Macquarie University Law School, Judy Allen, University of Western Australia, Felicity Flack, University of Western Australia |
| title_short | Sharing linked data for health research |
| title_sort | sharing linked data for health research toward better decision making |
| title_sub | toward better decision making |
| topic | Medical records / Access control / English-speaking countries Data protection / Law and legislation / English-speaking countries Medicine / Research / Law and legislation / English-speaking countries Linked data / Government policy / English-speaking countries |
| topic_facet | Medical records / Access control / English-speaking countries Data protection / Law and legislation / English-speaking countries Medicine / Research / Law and legislation / English-speaking countries Linked data / Government policy / English-speaking countries |
| url | https://doi.org/10.1017/9781108675789 |
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