The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis:
Abstract: Background<br>Vasculitides comprise a group of rare diseases which affect less than 5 in 10.000 individuals. Most types of vasculitis can become organ- and life-threatening and are characterized by chronicity, high morbidity and relapses, altogether resulting in significant morbidity...
Gespeichert in:
| Hauptverfasser: | , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Erlangen ; Nürnberg
Friedrich-Alexander-Universität Erlangen-Nürnberg
2022
|
| Online-Zugang: | Volltext Volltext |
| Zusammenfassung: | Abstract: Background<br>Vasculitides comprise a group of rare diseases which affect less than 5 in 10.000 individuals. Most types of vasculitis can become organ- and life-threatening and are characterized by chronicity, high morbidity and relapses, altogether resulting in significant morbidity and mortality. Previous studies have been either monocentric or mainly retrospective – studies with a prospective design mostly consisted of rather small cohorts of 100 to 200 patients.<br><br>The aim of the Joint Vasculitis Registry in German-speaking countries (GeVas) is to record all patients who have been recently diagnosed with vasculitis or who have changed their treatment due to a relapse (inception cohort). In GeVas, data are collected prospectively in a multicenter design in Germany, Austria and Switzerland. By this approach, courses of vasculitis and their outcomes can be monitored over an extended period.<br><br>Methods<br>GeVas is a prospective, web-based, multicenter, clinician-driven registry for the documentation of organ manifestations, damage, long-term progress and other outcomes of various types of vasculitis. The registry started recruiting in June 2019. As of October 2020, 14 centers have been initiated and started recruiting patients in Germany. Involvement of sites in Austria and the German-speaking counties of Switzerland is scheduled in the near future.<br><br>Discussion<br>In June 2019, we successfully established a prospective multicenter vasculitis registry being the first of its kind in German-speaking countries. The participating centers are currently recruiting, and systematic analysis of long-term vasculitis outcomes is expected in the ensuing period.<br><br>Trial registration<br>German Clinical Trials Register (Deutsches Register Klinischer Studien): DRKS00011866. Registered 10 May 2019 |
| Beschreibung: | 1 Online-Ressource |
Internformat
MARC
| LEADER | 00000nmm a2200000zc 4500 | ||
|---|---|---|---|
| 001 | BV048206350 | ||
| 003 | DE-604 | ||
| 005 | 00000000000000.0 | ||
| 007 | cr|uuu---uuuuu | ||
| 008 | 220510s2022 gw |||| o||u| ||||||eng d | ||
| 016 | 7 | |a 1239047975 |2 DE-101 | |
| 024 | 7 | |a urn:nbn:de:bvb:29-opus4-180736 |2 urn | |
| 035 | |a (OCoLC)1317695215 | ||
| 035 | |a (DE-599)DNB1239047975 | ||
| 040 | |a DE-604 |b ger |e rda | ||
| 041 | 0 | |8 3\p |a eng | |
| 044 | |a gw |c XA-DE-BW | ||
| 049 | |a DE-29 | ||
| 084 | |8 1\p |a 616.1 |2 23ksdnb | ||
| 084 | |8 2\p |a 610 |2 23sdnb | ||
| 100 | 1 | |a Iking-Konert, Christof |e Verfasser |4 aut | |
| 245 | 1 | 0 | |a The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| 264 | 1 | |a Erlangen ; Nürnberg |b Friedrich-Alexander-Universität Erlangen-Nürnberg |c 2022 | |
| 300 | |a 1 Online-Ressource | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b c |2 rdamedia | ||
| 338 | |b cr |2 rdacarrier | ||
| 520 | 3 | |a Abstract: Background<br>Vasculitides comprise a group of rare diseases which affect less than 5 in 10.000 individuals. Most types of vasculitis can become organ- and life-threatening and are characterized by chronicity, high morbidity and relapses, altogether resulting in significant morbidity and mortality. Previous studies have been either monocentric or mainly retrospective – studies with a prospective design mostly consisted of rather small cohorts of 100 to 200 patients.<br><br>The aim of the Joint Vasculitis Registry in German-speaking countries (GeVas) is to record all patients who have been recently diagnosed with vasculitis or who have changed their treatment due to a relapse (inception cohort). In GeVas, data are collected prospectively in a multicenter design in Germany, Austria and Switzerland. By this approach, courses of vasculitis and their outcomes can be monitored over an extended period.<br><br>Methods<br>GeVas is a prospective, web-based, multicenter, clinician-driven registry for the documentation of organ manifestations, damage, long-term progress and other outcomes of various types of vasculitis. The registry started recruiting in June 2019. As of October 2020, 14 centers have been initiated and started recruiting patients in Germany. Involvement of sites in Austria and the German-speaking counties of Switzerland is scheduled in the near future.<br><br>Discussion<br>In June 2019, we successfully established a prospective multicenter vasculitis registry being the first of its kind in German-speaking countries. The participating centers are currently recruiting, and systematic analysis of long-term vasculitis outcomes is expected in the ensuing period.<br><br>Trial registration<br>German Clinical Trials Register (Deutsches Register Klinischer Studien): DRKS00011866. Registered 10 May 2019 | |
| 700 | 1 | |a Wallmeier, Pia |e Verfasser |4 aut | |
| 700 | 1 | |a Arnold, Sabrina |e Verfasser |4 aut | |
| 700 | 1 | |a Adler, Sabine |e Verfasser |4 aut | |
| 700 | 1 | |a Groot, Kirsten de |d 1964- |e Verfasser |0 (DE-588)138225958 |4 aut | |
| 700 | 1 | |a Hellmich, Bernhard |d 1968- |e Verfasser |0 (DE-588)124958575 |4 aut | |
| 700 | 1 | |a Hoyer, Bimba Franziska |d 1977- |e Verfasser |0 (DE-588)131495836 |4 aut | |
| 700 | 1 | |a Holl-Ulrich, Konstanze |e Verfasser |4 aut | |
| 700 | 1 | |a Ihorst, Gabriele |e Verfasser |0 (DE-588)1121534643 |4 aut | |
| 700 | 1 | |a Kaufmann, Margit |e Verfasser |4 aut | |
| 700 | 1 | |a Kötter, Ina |d 1962- |e Verfasser |0 (DE-588)112926975 |4 aut | |
| 700 | 1 | |a Müller-Ladner, Ulf |d 1964- |e Verfasser |0 (DE-588)13143926X |4 aut | |
| 700 | 1 | |a Magnus, Tim |d 1969- |e Verfasser |0 (DE-588)122579496 |4 aut | |
| 700 | 1 | |a Rech, Jürgen |e Verfasser |4 aut | |
| 700 | 1 | |a Schubach, Fabian |d 1983- |e Verfasser |0 (DE-588)1136041273 |4 aut | |
| 700 | 1 | |a Schulze-Koops, Hendrik |e Verfasser |0 (DE-588)1157315909 |4 aut | |
| 700 | 1 | |a Venhoff, Nils |d 1975- |e Verfasser |0 (DE-588)128775904 |4 aut | |
| 700 | 1 | |a Wiech, Thorsten |d 1973- |e Verfasser |0 (DE-588)131519859 |4 aut | |
| 700 | 1 | |a Villiger, Peter Matthias |d 1955- |e Verfasser |0 (DE-588)130843539 |4 aut | |
| 700 | 1 | |a Lamprecht, Peter |e Verfasser |0 (DE-588)1200895096 |4 aut | |
| 787 | 0 | 8 | |i Sonderdruck aus |t BMC Rheumatology |g 5 (2021), 40 |o 10.1186/s41927-021-00206-2 |
| 856 | 4 | 0 | |u https://nbn-resolving.org/urn:nbn:de:bvb:29-opus4-180736 |x Resolving-System |z kostenfrei |3 Volltext |
| 856 | 4 | 0 | |u https://open.fau.de/handle/openfau/18073 |x Verlag |z kostenfrei |3 Volltext |
| 912 | |a ebook | ||
| 999 | |a oai:aleph.bib-bvb.de:BVB01-033587242 | ||
| 883 | 0 | |8 1\p |a aepkn |c 0,95834 |d 20210817 |q DE-101 |u https://d-nb.info/provenance/plan#aepkn | |
| 883 | 0 | |8 2\p |a aepsg |c 0,99229 |d 20210817 |q DE-101 |u https://d-nb.info/provenance/plan#aepsg | |
| 883 | 1 | |8 3\p |a npi |d 20210816 |q DE-101 |u https://d-nb.info/provenance/plan#npi | |
Datensatz im Suchindex
| _version_ | 1804183975234633728 |
|---|---|
| adam_txt | |
| any_adam_object | |
| any_adam_object_boolean | |
| author | Iking-Konert, Christof Wallmeier, Pia Arnold, Sabrina Adler, Sabine Groot, Kirsten de 1964- Hellmich, Bernhard 1968- Hoyer, Bimba Franziska 1977- Holl-Ulrich, Konstanze Ihorst, Gabriele Kaufmann, Margit Kötter, Ina 1962- Müller-Ladner, Ulf 1964- Magnus, Tim 1969- Rech, Jürgen Schubach, Fabian 1983- Schulze-Koops, Hendrik Venhoff, Nils 1975- Wiech, Thorsten 1973- Villiger, Peter Matthias 1955- Lamprecht, Peter |
| author_GND | (DE-588)138225958 (DE-588)124958575 (DE-588)131495836 (DE-588)1121534643 (DE-588)112926975 (DE-588)13143926X (DE-588)122579496 (DE-588)1136041273 (DE-588)1157315909 (DE-588)128775904 (DE-588)131519859 (DE-588)130843539 (DE-588)1200895096 |
| author_facet | Iking-Konert, Christof Wallmeier, Pia Arnold, Sabrina Adler, Sabine Groot, Kirsten de 1964- Hellmich, Bernhard 1968- Hoyer, Bimba Franziska 1977- Holl-Ulrich, Konstanze Ihorst, Gabriele Kaufmann, Margit Kötter, Ina 1962- Müller-Ladner, Ulf 1964- Magnus, Tim 1969- Rech, Jürgen Schubach, Fabian 1983- Schulze-Koops, Hendrik Venhoff, Nils 1975- Wiech, Thorsten 1973- Villiger, Peter Matthias 1955- Lamprecht, Peter |
| author_role | aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut |
| author_sort | Iking-Konert, Christof |
| author_variant | c i k cik p w pw s a sa s a sa k d g kd kdg b h bh b f h bf bfh k h u khu g i gi m k mk i k ik u m l uml t m tm j r jr f s fs h s k hsk n v nv t w tw p m v pm pmv p l pl |
| building | Verbundindex |
| bvnumber | BV048206350 |
| collection | ebook |
| ctrlnum | (OCoLC)1317695215 (DE-599)DNB1239047975 |
| format | Electronic eBook |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>04732nmm a2200625zc 4500</leader><controlfield tag="001">BV048206350</controlfield><controlfield tag="003">DE-604</controlfield><controlfield tag="005">00000000000000.0</controlfield><controlfield tag="007">cr|uuu---uuuuu</controlfield><controlfield tag="008">220510s2022 gw |||| o||u| ||||||eng d</controlfield><datafield tag="016" ind1="7" ind2=" "><subfield code="a">1239047975</subfield><subfield code="2">DE-101</subfield></datafield><datafield tag="024" ind1="7" ind2=" "><subfield code="a">urn:nbn:de:bvb:29-opus4-180736</subfield><subfield code="2">urn</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)1317695215</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)DNB1239047975</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-604</subfield><subfield code="b">ger</subfield><subfield code="e">rda</subfield></datafield><datafield tag="041" ind1="0" ind2=" "><subfield code="8">3\p</subfield><subfield code="a">eng</subfield></datafield><datafield tag="044" ind1=" " ind2=" "><subfield code="a">gw</subfield><subfield code="c">XA-DE-BW</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-29</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="8">1\p</subfield><subfield code="a">616.1</subfield><subfield code="2">23ksdnb</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="8">2\p</subfield><subfield code="a">610</subfield><subfield code="2">23sdnb</subfield></datafield><datafield tag="100" ind1="1" ind2=" "><subfield code="a">Iking-Konert, Christof</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Erlangen ; Nürnberg</subfield><subfield code="b">Friedrich-Alexander-Universität Erlangen-Nürnberg</subfield><subfield code="c">2022</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 Online-Ressource</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="520" ind1="3" ind2=" "><subfield code="a">Abstract: Background<br>Vasculitides comprise a group of rare diseases which affect less than 5 in 10.000 individuals. Most types of vasculitis can become organ- and life-threatening and are characterized by chronicity, high morbidity and relapses, altogether resulting in significant morbidity and mortality. Previous studies have been either monocentric or mainly retrospective – studies with a prospective design mostly consisted of rather small cohorts of 100 to 200 patients.<br><br>The aim of the Joint Vasculitis Registry in German-speaking countries (GeVas) is to record all patients who have been recently diagnosed with vasculitis or who have changed their treatment due to a relapse (inception cohort). In GeVas, data are collected prospectively in a multicenter design in Germany, Austria and Switzerland. By this approach, courses of vasculitis and their outcomes can be monitored over an extended period.<br><br>Methods<br>GeVas is a prospective, web-based, multicenter, clinician-driven registry for the documentation of organ manifestations, damage, long-term progress and other outcomes of various types of vasculitis. The registry started recruiting in June 2019. As of October 2020, 14 centers have been initiated and started recruiting patients in Germany. Involvement of sites in Austria and the German-speaking counties of Switzerland is scheduled in the near future.<br><br>Discussion<br>In June 2019, we successfully established a prospective multicenter vasculitis registry being the first of its kind in German-speaking countries. The participating centers are currently recruiting, and systematic analysis of long-term vasculitis outcomes is expected in the ensuing period.<br><br>Trial registration<br>German Clinical Trials Register (Deutsches Register Klinischer Studien): DRKS00011866. Registered 10 May 2019</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Wallmeier, Pia</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Arnold, Sabrina</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Adler, Sabine</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Groot, Kirsten de</subfield><subfield code="d">1964-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)138225958</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Hellmich, Bernhard</subfield><subfield code="d">1968-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)124958575</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Hoyer, Bimba Franziska</subfield><subfield code="d">1977-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)131495836</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Holl-Ulrich, Konstanze</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Ihorst, Gabriele</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)1121534643</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Kaufmann, Margit</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Kötter, Ina</subfield><subfield code="d">1962-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)112926975</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Müller-Ladner, Ulf</subfield><subfield code="d">1964-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)13143926X</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Magnus, Tim</subfield><subfield code="d">1969-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)122579496</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Rech, Jürgen</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Schubach, Fabian</subfield><subfield code="d">1983-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)1136041273</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Schulze-Koops, Hendrik</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)1157315909</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Venhoff, Nils</subfield><subfield code="d">1975-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)128775904</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Wiech, Thorsten</subfield><subfield code="d">1973-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)131519859</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Villiger, Peter Matthias</subfield><subfield code="d">1955-</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)130843539</subfield><subfield code="4">aut</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Lamprecht, Peter</subfield><subfield code="e">Verfasser</subfield><subfield code="0">(DE-588)1200895096</subfield><subfield code="4">aut</subfield></datafield><datafield tag="787" ind1="0" ind2="8"><subfield code="i">Sonderdruck aus</subfield><subfield code="t">BMC Rheumatology</subfield><subfield code="g">5 (2021), 40</subfield><subfield code="o">10.1186/s41927-021-00206-2</subfield></datafield><datafield tag="856" ind1="4" ind2="0"><subfield code="u">https://nbn-resolving.org/urn:nbn:de:bvb:29-opus4-180736</subfield><subfield code="x">Resolving-System</subfield><subfield code="z">kostenfrei</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="856" ind1="4" ind2="0"><subfield code="u">https://open.fau.de/handle/openfau/18073</subfield><subfield code="x">Verlag</subfield><subfield code="z">kostenfrei</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ebook</subfield></datafield><datafield tag="999" ind1=" " ind2=" "><subfield code="a">oai:aleph.bib-bvb.de:BVB01-033587242</subfield></datafield><datafield tag="883" ind1="0" ind2=" "><subfield code="8">1\p</subfield><subfield code="a">aepkn</subfield><subfield code="c">0,95834</subfield><subfield code="d">20210817</subfield><subfield code="q">DE-101</subfield><subfield code="u">https://d-nb.info/provenance/plan#aepkn</subfield></datafield><datafield tag="883" ind1="0" ind2=" "><subfield code="8">2\p</subfield><subfield code="a">aepsg</subfield><subfield code="c">0,99229</subfield><subfield code="d">20210817</subfield><subfield code="q">DE-101</subfield><subfield code="u">https://d-nb.info/provenance/plan#aepsg</subfield></datafield><datafield tag="883" ind1="1" ind2=" "><subfield code="8">3\p</subfield><subfield code="a">npi</subfield><subfield code="d">20210816</subfield><subfield code="q">DE-101</subfield><subfield code="u">https://d-nb.info/provenance/plan#npi</subfield></datafield></record></collection> |
| id | DE-604.BV048206350 |
| illustrated | Not Illustrated |
| index_date | 2024-07-03T19:47:52Z |
| indexdate | 2024-07-10T09:31:59Z |
| institution | BVB |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-033587242 |
| oclc_num | 1317695215 |
| open_access_boolean | 1 |
| owner | DE-29 |
| owner_facet | DE-29 |
| physical | 1 Online-Ressource |
| psigel | ebook |
| publishDate | 2022 |
| publishDateSearch | 2022 |
| publishDateSort | 2022 |
| publisher | Friedrich-Alexander-Universität Erlangen-Nürnberg |
| record_format | marc |
| spelling | Iking-Konert, Christof Verfasser aut The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis Erlangen ; Nürnberg Friedrich-Alexander-Universität Erlangen-Nürnberg 2022 1 Online-Ressource txt rdacontent c rdamedia cr rdacarrier Abstract: Background<br>Vasculitides comprise a group of rare diseases which affect less than 5 in 10.000 individuals. Most types of vasculitis can become organ- and life-threatening and are characterized by chronicity, high morbidity and relapses, altogether resulting in significant morbidity and mortality. Previous studies have been either monocentric or mainly retrospective – studies with a prospective design mostly consisted of rather small cohorts of 100 to 200 patients.<br><br>The aim of the Joint Vasculitis Registry in German-speaking countries (GeVas) is to record all patients who have been recently diagnosed with vasculitis or who have changed their treatment due to a relapse (inception cohort). In GeVas, data are collected prospectively in a multicenter design in Germany, Austria and Switzerland. By this approach, courses of vasculitis and their outcomes can be monitored over an extended period.<br><br>Methods<br>GeVas is a prospective, web-based, multicenter, clinician-driven registry for the documentation of organ manifestations, damage, long-term progress and other outcomes of various types of vasculitis. The registry started recruiting in June 2019. As of October 2020, 14 centers have been initiated and started recruiting patients in Germany. Involvement of sites in Austria and the German-speaking counties of Switzerland is scheduled in the near future.<br><br>Discussion<br>In June 2019, we successfully established a prospective multicenter vasculitis registry being the first of its kind in German-speaking countries. The participating centers are currently recruiting, and systematic analysis of long-term vasculitis outcomes is expected in the ensuing period.<br><br>Trial registration<br>German Clinical Trials Register (Deutsches Register Klinischer Studien): DRKS00011866. Registered 10 May 2019 Wallmeier, Pia Verfasser aut Arnold, Sabrina Verfasser aut Adler, Sabine Verfasser aut Groot, Kirsten de 1964- Verfasser (DE-588)138225958 aut Hellmich, Bernhard 1968- Verfasser (DE-588)124958575 aut Hoyer, Bimba Franziska 1977- Verfasser (DE-588)131495836 aut Holl-Ulrich, Konstanze Verfasser aut Ihorst, Gabriele Verfasser (DE-588)1121534643 aut Kaufmann, Margit Verfasser aut Kötter, Ina 1962- Verfasser (DE-588)112926975 aut Müller-Ladner, Ulf 1964- Verfasser (DE-588)13143926X aut Magnus, Tim 1969- Verfasser (DE-588)122579496 aut Rech, Jürgen Verfasser aut Schubach, Fabian 1983- Verfasser (DE-588)1136041273 aut Schulze-Koops, Hendrik Verfasser (DE-588)1157315909 aut Venhoff, Nils 1975- Verfasser (DE-588)128775904 aut Wiech, Thorsten 1973- Verfasser (DE-588)131519859 aut Villiger, Peter Matthias 1955- Verfasser (DE-588)130843539 aut Lamprecht, Peter Verfasser (DE-588)1200895096 aut Sonderdruck aus BMC Rheumatology 5 (2021), 40 10.1186/s41927-021-00206-2 https://nbn-resolving.org/urn:nbn:de:bvb:29-opus4-180736 Resolving-System kostenfrei Volltext https://open.fau.de/handle/openfau/18073 Verlag kostenfrei Volltext 1\p aepkn 0,95834 20210817 DE-101 https://d-nb.info/provenance/plan#aepkn 2\p aepsg 0,99229 20210817 DE-101 https://d-nb.info/provenance/plan#aepsg 3\p npi 20210816 DE-101 https://d-nb.info/provenance/plan#npi |
| spellingShingle | Iking-Konert, Christof Wallmeier, Pia Arnold, Sabrina Adler, Sabine Groot, Kirsten de 1964- Hellmich, Bernhard 1968- Hoyer, Bimba Franziska 1977- Holl-Ulrich, Konstanze Ihorst, Gabriele Kaufmann, Margit Kötter, Ina 1962- Müller-Ladner, Ulf 1964- Magnus, Tim 1969- Rech, Jürgen Schubach, Fabian 1983- Schulze-Koops, Hendrik Venhoff, Nils 1975- Wiech, Thorsten 1973- Villiger, Peter Matthias 1955- Lamprecht, Peter The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_auth | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_exact_search | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_exact_search_txtP | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_full | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_fullStr | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_full_unstemmed | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_short | The Joint Vasculitis Registry in German-speaking countries (GeVas) – a prospective, multicenter registry for the follow-up of long-term outcomes in vasculitis |
| title_sort | the joint vasculitis registry in german speaking countries gevas a prospective multicenter registry for the follow up of long term outcomes in vasculitis |
| url | https://nbn-resolving.org/urn:nbn:de:bvb:29-opus4-180736 https://open.fau.de/handle/openfau/18073 |
| work_keys_str_mv | AT ikingkonertchristof thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT wallmeierpia thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT arnoldsabrina thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT adlersabine thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT grootkirstende thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT hellmichbernhard thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT hoyerbimbafranziska thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT hollulrichkonstanze thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT ihorstgabriele thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT kaufmannmargit thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT kotterina thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT mullerladnerulf thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT magnustim thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT rechjurgen thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT schubachfabian thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT schulzekoopshendrik thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT venhoffnils thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT wiechthorsten thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT villigerpetermatthias thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis AT lamprechtpeter thejointvasculitisregistryingermanspeakingcountriesgevasaprospectivemulticenterregistryforthefollowupoflongtermoutcomesinvasculitis |