Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia:
Family caregivers of migrants with dementia constitute a population group that is hard to reach for research participation due to factors such as shame about the disease and past experiences of discrimination. In this article, research-ethical challenges associated with participant recruitment and q...
Gespeichert in:
| Hauptverfasser: | , , , , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Berlin
Alice Salomon Hochschule Berlin
2021
|
| Schlagworte: | |
| Online-Zugang: | kostenfrei https://nbn-resolving.org/urn:nbn:de:kobv:b1533-opus-4803 |
| Zusammenfassung: | Family caregivers of migrants with dementia constitute a population group that is hard to reach for research participation due to factors such as shame about the disease and past experiences of discrimination. In this article, research-ethical challenges associated with participant recruitment and qualitative data collection among relatives of migrants with dementia are discussed. Over a period of 8 years, 3 studies were conducted to investigate the experiences of family caregivers for persons with dementia of Turkish descent in Germany. Across these studies, a total of 32 family caregivers were interviewed. In this article, based on the "Principles of Biomedical Ethics" according to Beauchamp and Childress (2009), research-ethical conflicts associated with sampling methods and the presence of third parties during qualitative interviews are discussed. The potential risks emanating from sampling strategies and the presence of third parties during interviews regarding the voluntary nature of study participation are examined. Additionally, this article formulates recommendations for ensuring truly voluntary participation and protecting both the participants (family caregivers) and relatives with dementia from harm. These practical recommendations aim to help future researchers to avoid ethical pitfalls and represent a roadmap for making necessary methodological decisions. Quelle: AliceOpen. |
| Beschreibung: | Veröffentlicht auf aliceOpen, dem Publikationsserver der Alice Salomon Hochschule Berlin am 19.01.2022 |
| Beschreibung: | Online-Ressource (9 Seiten) |
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| spelling | Tezcan-Güntekin, Hürrem Verfasser aut Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia Hürrem Tezcan-Güntekin, Ilknur Özer-Erdogdu, Yüce Yilmaz-Aslan, Tugba Aksakal, Rona Bird Berlin Alice Salomon Hochschule Berlin 2021 Online-Ressource (9 Seiten) txt rdacontent c rdamedia cr rdacarrier Veröffentlicht auf aliceOpen, dem Publikationsserver der Alice Salomon Hochschule Berlin am 19.01.2022 Family caregivers of migrants with dementia constitute a population group that is hard to reach for research participation due to factors such as shame about the disease and past experiences of discrimination. In this article, research-ethical challenges associated with participant recruitment and qualitative data collection among relatives of migrants with dementia are discussed. Over a period of 8 years, 3 studies were conducted to investigate the experiences of family caregivers for persons with dementia of Turkish descent in Germany. Across these studies, a total of 32 family caregivers were interviewed. In this article, based on the "Principles of Biomedical Ethics" according to Beauchamp and Childress (2009), research-ethical conflicts associated with sampling methods and the presence of third parties during qualitative interviews are discussed. The potential risks emanating from sampling strategies and the presence of third parties during interviews regarding the voluntary nature of study participation are examined. Additionally, this article formulates recommendations for ensuring truly voluntary participation and protecting both the participants (family caregivers) and relatives with dementia from harm. These practical recommendations aim to help future researchers to avoid ethical pitfalls and represent a roadmap for making necessary methodological decisions. Quelle: AliceOpen. Creative Commons - CC BY - Namensnennung 4.0 International Einwanderer (DE-588)4151434-8 gnd rswk-swf Demenz (DE-588)4011404-1 gnd rswk-swf Deutschland (DE-588)4011882-4 gnd rswk-swf Deutschland (DE-588)4011882-4 g Einwanderer (DE-588)4151434-8 s Demenz (DE-588)4011404-1 s DE-604 Özer-Erdogdu, Ilknur Verfasser aut Yilmaz-Aslan, Yüce Verfasser aut Aksakal, Tugba Verfasser aut Bird, Rona Verfasser aut application/pdf https://opus4.kobv.de/opus4-ash/frontdoor/index/index/docId/480 Verlag kostenfrei Volltext https://nbn-resolving.org/urn:nbn:de:kobv:b1533-opus-4803 Resolving-System |
| spellingShingle | Tezcan-Güntekin, Hürrem Özer-Erdogdu, Ilknur Yilmaz-Aslan, Yüce Aksakal, Tugba Bird, Rona Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia Einwanderer (DE-588)4151434-8 gnd Demenz (DE-588)4011404-1 gnd |
| subject_GND | (DE-588)4151434-8 (DE-588)4011404-1 (DE-588)4011882-4 |
| title | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia |
| title_auth | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia |
| title_exact_search | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia |
| title_exact_search_txtP | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia |
| title_full | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia Hürrem Tezcan-Güntekin, Ilknur Özer-Erdogdu, Yüce Yilmaz-Aslan, Tugba Aksakal, Rona Bird |
| title_fullStr | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia Hürrem Tezcan-Güntekin, Ilknur Özer-Erdogdu, Yüce Yilmaz-Aslan, Tugba Aksakal, Rona Bird |
| title_full_unstemmed | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia Hürrem Tezcan-Güntekin, Ilknur Özer-Erdogdu, Yüce Yilmaz-Aslan, Tugba Aksakal, Rona Bird |
| title_short | Ethical and methodological challenges in research with hard-to-reach groups: examples from research on family caregivers for migrant older adults living with dementia |
| title_sort | ethical and methodological challenges in research with hard to reach groups examples from research on family caregivers for migrant older adults living with dementia |
| topic | Einwanderer (DE-588)4151434-8 gnd Demenz (DE-588)4011404-1 gnd |
| topic_facet | Einwanderer Demenz Deutschland |
| url | https://opus4.kobv.de/opus4-ash/frontdoor/index/index/docId/480 https://nbn-resolving.org/urn:nbn:de:kobv:b1533-opus-4803 |
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