Verfügbarkeit: Mission muscular dystrophy

Mission muscular dystrophy: a handbook and source of inspiration for those living with a progressive disease

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Bibliographische Detailangaben
1. Verfasser:	Hornkamp, Silvia (VerfasserIn)
Format:	Buch
Sprache:	English German
Veröffentlicht:	München Literareon 2018
Schriftenreihe:	Literareon
Schlagworte:	Muskeldystrophie Alltag Tipps Literareon
Online-Zugang:	Inhaltsverzeichnis Inhaltstext Inhaltsverzeichnis
Beschreibung:	32 Seiten Illustrationen 15 x 21 cm, 105 g
ISBN:	9783831620692 3831620695

Internformat

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Datensatz im Suchindex

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adam_text	TABLE OF CONTENTS WHAT IS DUCHENNE MUSCULAR DYSTROPHY (ALSO KNOWN AS DUCHENNE OR DMD...................................7 HOW DOES THE CHANGE IN THE GENE CAUSE PROBLEMS IN THE BODY?..........................................................................7 HOW DOES IT FEEL TO BE CONFRONTED WITH THE DIAGNOSIS OF DM D?..........................................................9 WHERE DOES THE NAME DUCHENNE COME FROM? ......... 10 WHAT IS THE MOST FRIGHTENING ASPECT FOR PARENTS AT THE DIAGNOSIS OF DUCHENNE MUSCULAR DYSTROPHY? ..... 11 WHY IS THERE NO CURE FOR DUCHENNE MUSCULAR DYSTROPHY?..................................................................... 11 THE COURSE OF THE DISEASE ............................................... 13 CAN BOYS WITH DUCHENNE ATTEND MAINSTREAM SCHOOLS?..........................................................................15 CAN DUCHENNE BOYS PARTICIPATE IN SPORTS ACTIVITIES? .. 15 WHAT CAN DUCHENNE BOYS AND THEIR PARENTS PROACTIVELY D O ? ...............................................................16 WHAT CAN OUR SOCIETY DO TO HELP? ................................ 19 QUALITY OF LIFE ................................................................. 19 THE CHALLENGES WE FACE AND HOW WE ADAPT .................. 20 WORDS FROM A BOY LIVING WITH D UCHENNE ................... 22 WHY WE SAY NO TO NEWBORN SCREENING .................... 23 ABOUT THE AUTHOR ......................... 29 ABOUT THE TRANSLATOR 30
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spelling	Hornkamp, Silvia Verfasser (DE-588)1142797937 aut Mission Duchenne Muskeldystrophie Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease Silvia Hornkamp ; translator: Susan Nosbüsch München Literareon 2018 32 Seiten Illustrationen 15 x 21 cm, 105 g txt rdacontent n rdamedia nc rdacarrier Literareon Muskeldystrophie Alltag Tipps Herbert Utz Verlag (DE-588)1065500602 pbl B:DE-101 application/pdf http://d-nb.info/1164033131/04 Inhaltsverzeichnis X:MVB text/html http://deposit.dnb.de/cgi-bin/dokserv?id=1af04e4551844b19923558e7b8e323c0&prov=M&dok_var=1&dok_ext=htm Inhaltstext DNB Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030634580&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis
spellingShingle	Hornkamp, Silvia Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease
title	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease
title_alt	Mission Duchenne Muskeldystrophie
title_auth	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease
title_exact_search	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease
title_full	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease Silvia Hornkamp ; translator: Susan Nosbüsch
title_fullStr	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease Silvia Hornkamp ; translator: Susan Nosbüsch
title_full_unstemmed	Mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease Silvia Hornkamp ; translator: Susan Nosbüsch
title_short	Mission muscular dystrophy
title_sort	mission muscular dystrophy a handbook and source of inspiration for those living with a progressive disease
title_sub	a handbook and source of inspiration for those living with a progressive disease
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