Care at the close of life: evidence and experience
Saved in:
| Other Authors: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
New York
McGraw-Hill Medical
2011
|
| Series: | JAMAevidence
|
| Subjects: | |
| Online Access: | Klappentext Inhaltsverzeichnis |
| Physical Description: | xxii, 598 Seiten 28 cm |
| ISBN: | 9780071637954 0071637958 |
Staff View
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Record in the Search Index
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| adam_text | Contributors
Foreword
Preface
Acknowledgments
A. Communication Issues
1. Initiating End-of-Life Discussions With Seriously III
Patients: Addressing the “Elephant in the Room
Timothy E. Quill, MD
2. Beyond Advance Directives: Importance of
Communication Skills for Care at the End of Life
James A. Tulsky, MD
3. Decision Making at a Time of Crisis Near the End
of Life
David E. Weissman, MD
4. Dealing With Conflict in Caring for the Seriously III:
“It Was Just Out of the Question”
Anthony L. Back, MD; Robert M. Arnold, MD
B. Symptom Management
5. Managing an Acute Pain Crisis in a Patient With
Advanced Cancer: “This Is as Much of a Crisis as
a Code”
Natalie Moryl, MD; Nessa Coyle, NP, PhD;
Kathleen M. Foley, MD
6. Management of Dyspnea in Patients With
Far-Advanced Lung Disease: “Once I Lose It, It’s
Kind of Hard to Catch It...”
John M. Luce, MD; Judith A. Luce, MD
7. Management of Intractable Nausea and Vomiting
in Patients at the End of Life: “I Was Feeling
Nauseous All of the Time.. .Nothing Was Working”
Gordon J. Wood, MD; Joseph W. Shega, MD;
Beth Lynch, NP; Jamie H. von Roenn, MD
8. Palliative Care for Frail Older Adults: “There Are
Things I Can t Do Anymore That I Wish I Could...”
Kenneth S. Boockvar, MD, MS; Diane E. Meier, MD
9. Palliative Management of Fatigue at the Close of
Life: “It Feels Like My Body Is Just Worn Out”
Sriram Yennurajalingam, MD; Eduardo Bruera, MD
10. Spinal Cord Compression in Patients With Advanced
Metastatic Cancer: “All I Care About Is Walking and
Living My Life”
Janet L. Abrahm, MD; Michael B. Banffy, MD;
Mitchel B. Harris, MD
11. Agitation and Delirium at the End of Life: “We
Couldn’t Manage Him”
William Breitbart, MD; Yesne Alici, MD
C. Disease Management
12. Alzheimer Disease: It’s OK, Mama, If You Want
to Go, It’s OK”
Ann C. Hurley, RN, DNSc; Ladislav Volicer, MD, PhD
13. Practical Considerations in Dialysis Withdrawal:
“To Have That Option Is a Blessing”
Lewis M. Cohen, MD; Michael J. Germain, MD;
David M. Poppel, MD
14. Overcoming the False Dichotomy of Curative vs
Palliative Care for Late-Stage HIV/AIDS: “Let Me
Live the Way I Want to Live, Until I Can’t”
Peter A. Selwyn, MD, MPH; Marshall Forstein, MD
15. Palliative Care for Patients With Heart Failure
Steven Z. Pantilat, MD; Anthony E. Steimle, MD
16. Integrating Palliative Care for Liver Transplant
Candidates: “Too Well for Transplant, Too Sick for Life”
Anne M. Larson, MD; J. Randall Curtis, MD, MPH
17. Palliative Care for Patients With Amyotrophic
Lateral Sclerosis: “Prepare for the Worst and
Hope for the Best”
Hiroshi Mitsumoto, MD, DSc; Judith G. Rabkin, PhD, MPH
18. Palliative Care for Patients With Head and Neck
Cancer: “I Would Like a Quick Return to a Normal
Lifestyle”
Nathan E. Goldstein, MD; Eric Genden, MD;
R. Sean Morrison, MD
D. Other Patient Management Issues
19. Complexities in Prognostication in Advanced
Cancer: “To Help Them Live Their Lives the Way
They Want”
Elizabeth B. Lamont, MD, MS; Nicholas A.
Christakis, MD, PhD, MPH
20. Caring for the Child With Cancer at the Close of
Life: “There Are People Who Make It, and I’m
Hoping I’m One of Them”
Craig A. Hurwitz, MD; Janet Duncan, MSN, CPNP;
Joanne Wolfe, MD, MPH
21. Sudden Traumatic Death in Children: “We Did
Everything, But Your Child Didn’t Survive”
Robert D. Truog, MD; Grace H. Christ, DSW;
David M. Browning, MSW; Elaine C. Meyer, PhD, RN
Xi
xix
XXi
XXiii
1
3
13
25
35
45
47
61
73
89
101
115
Contents
22. The Role of Chemotherapy at the End of Life: “When Is
Enough, Enough?”
Sarah E. Harrington, MD; Thomas J. Smith, MD
23. Palliative Care in the Final Days of Life: “They
Were Expecting It at Any Time”
fames Hallenbeck, MD
E. Psychological, Social, and Spiritual Issues
24. Psychological Considerations, Growth, and
Transcendence at the End of Life: The Art of
the Possible
Susan D. Block, MD
25. Caring for Bereaved Patients: “All the Doctors
Just Suddenly Go”
Holly Gwen Prigerson, PhD; Selby C. Jacobs, MD, MPH
26. Adolescent Grief: “It Never Really Hit Me.. .Until
It Actually Happened”
Grace H. Christ, DSW; Karolynn Siegel, PhD;
Adolph E. Christ, MD, DrMSc
27. Dignity-Conserving Care—A New Model for
Palliative Care: Helping the Patient Feel Valued
Harvey Max Chochinov, MD, PhD, FRSC
28. Physician Opportunities to Support Family
Caregivers at the End of Life: “They Don t
Know What They Don’t Know”
Michael W. Rabow, MD; Joshua M. Hauser, MD;
Jocelia Adams, RN
29. Spiritual Issues in the Care of Dying Patients:
. .It’s OK Between Me and God”
Daniel P. Sulmasy, OFM, MD, PhD
F. Ethical Issues
30. Responding to Requests for Physician-Assisted
Suicide: “These Are Uncharted Waters for
Both of Us...”
Paul B. Bascom, MD; Susan W. Tolle, MD
31. Palliative Sedation in Dying Patients: “We Turn to
It When Everything Else Hasn’t Worked”
Bernard Lo, MD; Gordon Rubenfeld, MD, MSc
G. Cross-Cultural and Special Populations issues
32. Negotiating Cross-Cultural Issues at the End of
Life: “You Got to Go Where He Lives”
Marjorie Kagawa-Singer, PhD, MN, RN;
Leslie J. Blackhall, MD, MTS
33. Palliative Care for Latino Patients and Their Families:
“Whenever We Prayed, She Wept” 431
Alexander K. Smith, MD, MS, MPH;
Rebecca L. Sudore, MD; Eliseo J. Perez-Stable, MD
34. End-of-Life Care for Homeless Patients: “She Says
She Is There to Help Me in Any Situation” 445
Margot B. Kushel, MD; Christine Miaskowski, RN, PhD
35. Palliative Care for Prison Inmates: “Don’t Let Me
Die in Prison” 457
John F. Linder, MSW, LCSW; Frederick J. Meyers, MD
H. Settings of Care (Structural Issues) 471
36. The Role of Hospice and Other Services: Serving
Patients Who May Die Soon and Their Families 473
Joanne Lynn, MD, MS
37. Secondary and Tertiary Palliative Care in Hospitals 489
Charles F. von Gunten, MD, PhD
38. Withdrawal of Life Support: Intensive Caring at the
End of Life 499
Thomas J. Prendergast, MD; Kathleen A. Puntillo, RN, DNSc
39. Meeting Palliative Care Needs in Post-Acute Care
Settings: “To Help Them Live Until They Die 513
Laura C. Hanson, MD, MPH; Mary Ersek, PhD, RN
40. Referring a Patient and Family to High-Quality
Palliative Care at the Close of Life: “We Met a
New Personality.. .With This Level of Compassion
and Empathy” 523
Joan M. Teno, MD, MS; Stephen R. Connor, PhD
I. Clinician Self-Care 537
41. Care of the Dying Doctor: On the Other End of
the Stethoscope 539
Erik Fromme, MD; J. Andrew Billings, MD
42. Self-Care of Physicians Caring for Patients at the
End of Life: “Being Connected.. .A Key to My Survival” 551
Michael K. Kearney, MD; Radhule B. Weininger,
MD, PhD; Mary L. S. Vachon, RN, PhD;
Richard L. Harrison, PhD; Balfour M. Mount, MD
Answers to Chapter Questions 565
Glossary 571
Index 587
285
301
311
313
327
339
353
363
377
389
391
403
415
417
X
Part of the JAMAevidence series, Care at
the Close of Life: Evidence and Experience
offers evidence-based and clinically expert
guidance on caring for patients with
life-limiting illnesses. The book thoroughly
updates the 42 journal articles originally
published as JAMA s acclaimed
Perspectives on Care at the Close of
Life series and includes never-before-
published material. Care at the Close of Life
covers a wide range of clinical syndromes,
disease processes, communication
challenges, and issues faced by patients
and families in a variety of health care
settings. Throughout the book, emphasis
is on the principles of palliative care for the
patient and family, with careful attention
given to physical, psychological, social,
and spiritual domains of care.
Each chapter begins with a patient case
study to introduce the clinical problem;
it then incorporates the words and
perspectives of affected patients, their
families, and treating clinicians.
Internationally renowned authors review
the typical challenges raised by the case,
offering state-of-the-art, evidence-based
assessment and treatment approaches.
FEATURES
• Fully revised and updated text with new
evidence and references, including the search
methodology for each chapter s update
• Evidence-based orientation presents the current
state of knowledge in the care of terminally ill
patients and support for their families
and caregivers
• Practical clinical guidance and approaches
from international experts in palliative care
• Self-assessment Q A reinforces your knowledge
of each chapter s content and helps you prepare
for exams
• A useful Glossary of acronyms, terms, and tests
• Updated resources for each chapter offer
current, authoritative sources of diagnostic and
treatment information that can help you optimize
palliative care
• Medline PubMed ID numbers facilitate quick,
convenient access to references
|
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| title | Care at the close of life evidence and experience |
| title_auth | Care at the close of life evidence and experience |
| title_exact_search | Care at the close of life evidence and experience |
| title_full | Care at the close of life evidence and experience edited by Stephen J. McPhee, MD [und 4 weitere] |
| title_fullStr | Care at the close of life evidence and experience edited by Stephen J. McPhee, MD [und 4 weitere] |
| title_full_unstemmed | Care at the close of life evidence and experience edited by Stephen J. McPhee, MD [und 4 weitere] |
| title_short | Care at the close of life |
| title_sort | care at the close of life evidence and experience |
| title_sub | evidence and experience |
| topic | Terminal care Palliative treatment Primary care (Medicine) Terminal Care methods Palliative Care methods Terminally Ill Palliativpflege (DE-588)7730204-7 gnd |
| topic_facet | Terminal care Palliative treatment Primary care (Medicine) Terminal Care methods Palliative Care methods Terminally Ill Palliativpflege |
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