Solidarity in biomedicine and beyond:
In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health an...
Gespeichert in:
| Hauptverfasser: | , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2017
|
| Schriftenreihe: | Cambridge bioethics and law
|
| Schlagworte: | |
| Online-Zugang: | BSB01 FHN01 UBG01 Volltext Inhaltsverzeichnis |
| Zusammenfassung: | In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer |
| Beschreibung: | Title from publisher's bibliographic system (viewed on 28 Feb 2017) |
| Beschreibung: | 1 online resource (xiv, 231 pages) |
| ISBN: | 9781139696593 |
| DOI: | 10.1017/9781139696593 |
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| 520 | |a In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer | ||
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Datensatz im Suchindex
| _version_ | 1804177407099273216 |
|---|---|
| adam_text | Titel: Solidarity in biomedicine and beyond
Autor: Prainsack, Barbara
Jahr: 2016
CONTENTS
Foreword page xi
HughWhittall
1 Solidarity: A Brief History of A Concept and A Project
1.1 Introduction 1
1.2 A Concise Overview of the History of Solidarity 2
1.3 Why Solidarity? Our Previous Work on Solidarity for the
Nuffield Council on Bioethics 4
1.4 Solidarity as an Emerging Concept in Recent Bioethical Writing
1.5 Looking Ahead: Our Working Definition of Solidarity
and Ihree Case Studies 9
1.6 Overview of this Book: Solidarity, Theory and Practice 10
PART I Theorising Solidarity
2 Solidarity: Intellectual Background and Important
Ihemes 19
2.1 Introduction 19
2.2 Some Early Sociological Work on Solidarity 19
2.3 Solidarity-Related Themes in Recent and Contemporary
Social and Political Ihought 23
2.4 Individuais, Community and the Seif: Solidarity
and Communitarianisrn 24
2.5 Relational Subjectivity, the Ethics of Care and the Role
of DirTerence: Precursors of, and Influences from Feminist
and Postmodern Scholarship 30
2.6 Solidarity and Rational Choice 33
2.7 Inequaiities, the Welfare State and Contractual Solidarity 34
2.8 Nation States and Global Solidarity 36
2.9 Inclusion, Exclusion and Conflict: Agonistic Solidarity 39
2.10 Conciusion 41
3 What is Solidarity? 43
3.1 Introduction 43
3.2 Solidarity as Practice 44
3.3 Personhood as a Relational Concept 48
3.4 Our Working Definition of Solidarity 52
3.5 Ihree Tiers of Solidarity 54
3.6 Distinctions and Clarifications 57
3.7 Responses to Our Definition and Critique of Our Approach 62
3.8 Some Political Implications of Our Understanding of Solidarity 70
3.9 Conciusion 71
4 Solidarity: Normative Approaches 73
4.1 Introduction 73
4.2 Solidarity: Descriptive and Crypto-Normative Usage 73
4.3 Solidarity and Normativity 75
4.4 From Axiological to Deontic: Ihe Normativity of Our
Understanding of Solidarity 77
4.5 Normative Solidarity: Three Approaches 80
4.6 Conclusions 93
PART II Solidarity in Practice
5 Solidarity in Practice I: Governing Health Databases 97
5.1 Introduction 97
5.2 Power of Big Data 99
5.3 What Databases are Suitable for Solidarity-Based
Governance? 102
5.4 Our Approach: Solidarity-Based Databank Governance 106
5.5 Distinguishing Features of a Solidarity-Based Database Model 109
5.6 Implications of a Solidarity-Based Approach for Consent
and Returning Findings 113
5.7 Solidarity and Autonomy as Guiding Principles in Health
Database Governance 118
5.8 Harm Mitigation and a Focus on Fixing the System1 120
5.9 Conciusion 122
6 Solidarity in Practice II: Personalised Medicine
and Healthcare 123
6.1 Introduction 123
6.2 The Changing Meaning of DifTerence in Medicine 126
6.3 Personalised Solidaristic Medicine and Healthcare: Four
Examples 129
6.4 Conciusion 142
7 Solidarity and Organ Donation 145
7.1 Introduction 145
7.2 Solidarity and Organ Donation 147
7.3 Live Organ Donation between Strangers: Inter-personal Practice
of Solidarity? 149
7.4 Donor Clubs and Priority to Donors: Group-based
Solidarity? 156
7.5 Opt-Out Consent to Deceased Organ Donation: An Instance
of Contractual Solidarity? 162
7.6 Conclusions 165
PART III Conclusions
8 Solidarity with Whom? Conclusions and Ways
Forward 169
8.1 Introduction 169
8.2 Solidarity in Biomedical Practice and Policy 170
8.3 Beyond Biomedicine: Theoretical Upshots and Conclusions 177
8.4 Solidarity with Whom? Conclusions and Recommendations 183
Afterword 187
Graeme Laurie
Bibliography 193
Index 225
|
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| contents | Solidarity : a brief history of a concept, and a project -- Solidarity : intellectual background and important themes -- What is solidarity? -- Solidarity - normative approaches -- Solidarity in practice I : governing health databases -- Solidarity in practice II : personalised medicine and health care -- Solidarity and organ donation -- Solidarity with whom? Conclusions and ways forward |
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| dewey-ones | 610 - Medicine and health |
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| dewey-sort | 3610.72 14 |
| dewey-tens | 610 - Medicine and health |
| discipline | Soziologie Medizin |
| doi_str_mv | 10.1017/9781139696593 |
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| spelling | Prainsack, Barbara Verfasser aut Solidarity in biomedicine and beyond Barbara Prainsack, Alena Buyx Cambridge Cambridge University Press 2017 1 online resource (xiv, 231 pages) txt rdacontent c rdamedia cr rdacarrier Cambridge bioethics and law Title from publisher's bibliographic system (viewed on 28 Feb 2017) Solidarity : a brief history of a concept, and a project -- Solidarity : intellectual background and important themes -- What is solidarity? -- Solidarity - normative approaches -- Solidarity in practice I : governing health databases -- Solidarity in practice II : personalised medicine and health care -- Solidarity and organ donation -- Solidarity with whom? Conclusions and ways forward In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer Medizin Medicine / Research / Methodology Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Solidarität (DE-588)4055429-6 gnd rswk-swf Biomedizin (DE-588)4647152-2 gnd rswk-swf Biomedizin (DE-588)4647152-2 s Medizinische Ethik (DE-588)4074672-0 s Solidarität (DE-588)4055429-6 s 1\p DE-604 Buyx, Alena 1977- Verfasser (DE-588)130408387 aut Erscheint auch als Druck-Ausgabe, hardback 978-1-107-07424-8 Erscheint auch als Druck-Ausgabe, paperback 978-1-107-42478-4 https://doi.org/10.1017/9781139696593 Verlag URL des Erstveröffentlichers Volltext HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029649109&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | Prainsack, Barbara Buyx, Alena 1977- Solidarity in biomedicine and beyond Solidarity : a brief history of a concept, and a project -- Solidarity : intellectual background and important themes -- What is solidarity? -- Solidarity - normative approaches -- Solidarity in practice I : governing health databases -- Solidarity in practice II : personalised medicine and health care -- Solidarity and organ donation -- Solidarity with whom? Conclusions and ways forward Medizin Medicine / Research / Methodology Medizinische Ethik (DE-588)4074672-0 gnd Solidarität (DE-588)4055429-6 gnd Biomedizin (DE-588)4647152-2 gnd |
| subject_GND | (DE-588)4074672-0 (DE-588)4055429-6 (DE-588)4647152-2 |
| title | Solidarity in biomedicine and beyond |
| title_auth | Solidarity in biomedicine and beyond |
| title_exact_search | Solidarity in biomedicine and beyond |
| title_full | Solidarity in biomedicine and beyond Barbara Prainsack, Alena Buyx |
| title_fullStr | Solidarity in biomedicine and beyond Barbara Prainsack, Alena Buyx |
| title_full_unstemmed | Solidarity in biomedicine and beyond Barbara Prainsack, Alena Buyx |
| title_short | Solidarity in biomedicine and beyond |
| title_sort | solidarity in biomedicine and beyond |
| topic | Medizin Medicine / Research / Methodology Medizinische Ethik (DE-588)4074672-0 gnd Solidarität (DE-588)4055429-6 gnd Biomedizin (DE-588)4647152-2 gnd |
| topic_facet | Medizin Medicine / Research / Methodology Medizinische Ethik Solidarität Biomedizin |
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