Cancer on the margins method and meaning in participatory research (University of Toronto Press, 2009)
Includes bibliographical references and index
Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch