Children with complex and continuing health needs the experiences of children, families and care staff - Hewitt-Taylor, Jaqui (Jessica Kingsley Publishers, 2008)
Children with complex and continuing health needs -- Being a child or young person with complex needs -- Being the parent of a child who has complex needs -- Premature babies -- Families whose children have complex needs -- Diagnosis -- Support -- Healthcare -- Education -- Society -- Working with children and their families -- Conclusion
Includes bibliographical references (pages 199-201) and indexes
'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are s