Rare Diseases in the Age of Health 2.0:
Saved in:
| Main Author: | |
|---|---|
| Format: | Electronic eBook |
| Language: | English |
| Published: |
2014
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| Series: | Communications in Medical and Care Compunetics
4 |
| Subjects: | |
| Online Access: | BTU01 FHA01 FHI01 FHN01 FHR01 FKE01 FRO01 FWS01 FWS02 UBY01 Volltext |
| Item Description: | This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy |
| Physical Description: | 1 Online-Ressource (XXXIII, 292 p.) 14 illus |
| ISBN: | 9783642386435 |
Staff View
MARC
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Record in the Search Index
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| author | Bali, Rajeev K. |
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| dewey-full | 610.28 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 610 - Medicine and health |
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| id | DE-604.BV041471031 |
| illustrated | Not Illustrated |
| indexdate | 2025-02-20T06:39:06Z |
| institution | BVB |
| isbn | 9783642386435 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-026917173 |
| oclc_num | 868364366 |
| open_access_boolean | |
| owner | DE-Aug4 DE-92 DE-634 DE-859 DE-898 DE-BY-UBR DE-573 DE-861 DE-706 DE-863 DE-BY-FWS DE-862 DE-BY-FWS |
| owner_facet | DE-Aug4 DE-92 DE-634 DE-859 DE-898 DE-BY-UBR DE-573 DE-861 DE-706 DE-863 DE-BY-FWS DE-862 DE-BY-FWS |
| physical | 1 Online-Ressource (XXXIII, 292 p.) 14 illus |
| psigel | ZDB-2-ENG |
| publishDate | 2014 |
| publishDateSearch | 2014 |
| publishDateSort | 2014 |
| record_format | marc |
| series | Communications in Medical and Care Compunetics |
| series2 | Communications in Medical and Care Compunetics |
| spellingShingle | Bali, Rajeev K. Rare Diseases in the Age of Health 2.0 Communications in Medical and Care Compunetics Engineering Medical records / Data processing Biomedical engineering Biomedical Engineering Health Informatics Health Economics Datenverarbeitung Ingenieurwissenschaften |
| title | Rare Diseases in the Age of Health 2.0 |
| title_auth | Rare Diseases in the Age of Health 2.0 |
| title_exact_search | Rare Diseases in the Age of Health 2.0 |
| title_full | Rare Diseases in the Age of Health 2.0 edited by Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon Ibell |
| title_fullStr | Rare Diseases in the Age of Health 2.0 edited by Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon Ibell |
| title_full_unstemmed | Rare Diseases in the Age of Health 2.0 edited by Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon Ibell |
| title_short | Rare Diseases in the Age of Health 2.0 |
| title_sort | rare diseases in the age of health 2 0 |
| topic | Engineering Medical records / Data processing Biomedical engineering Biomedical Engineering Health Informatics Health Economics Datenverarbeitung Ingenieurwissenschaften |
| topic_facet | Engineering Medical records / Data processing Biomedical engineering Biomedical Engineering Health Informatics Health Economics Datenverarbeitung Ingenieurwissenschaften |
| url | http://link.springer.com/book/10.1007%2F978-3-642-38643-5 |
| volume_link | (DE-604)BV041589719 |
| work_keys_str_mv | AT balirajeevk rarediseasesintheageofhealth20 AT boslodewijk rarediseasesintheageofhealth20 AT gibbonsmichaelchristopher rarediseasesintheageofhealth20 AT ibellsimon rarediseasesintheageofhealth20 |