Comparative issues in the governance of research biobanks: property, privacy, intellectual property, and the role of technology
Saved in:
| Other Authors: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
Berlin [u.a.]
Springer
2013
|
| Subjects: | |
| Online Access: | Inhaltsverzeichnis |
| Physical Description: | VIII, 339 S. graph. Darst. |
| ISBN: | 9783642331152 3642331157 |
Staff View
MARC
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| 245 | 1 | 0 | |a Comparative issues in the governance of research biobanks |b property, privacy, intellectual property, and the role of technology |c Giovanni Pascuzzi ... (eds.) |
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Record in the Search Index
| _version_ | 1804149804595412992 |
|---|---|
| adam_text | Contents
1
Introduction: A
Law and Technology Approach to the Law
of
Biobanking......................................... 1
Umberto
Izzo,
Matteo Macilotti, and Giovanni Pascuzzi
Part
I Property and Privacy
in Biobanking
2
Research Biobanks
Meet Synthetic Biology: Autonomy and
Ownership
........................................... 11
Stephen R. Munzer
3
Regulating Biobanks: Another Triple Bottom Line
............. 41
Roger Brownsword
4
Health Insurance, Employment, and the Human Genome: Genetic
Discrimination and Biobanks in the United States
............. 63
Eric A. Feldman and Chelsea Darnell
5
Ownership of
Biomedical
Information in Biobanks
............ 77
Naomi Hawkins,
Nadja
Kanellopoulou, Jane Kaye, Karen Melham,
Paula Boddington,
Liam
Curren,
and Heather Gowans
6
Human Tissues in the Public Space : Beyond the
Property/Privacy Dichotomy
.............................. 87
Mariachiara Tallacchini
7
Should Privacy Be Abolished in Genetics and
Biobanking?...... 105
Amedeo Santosuosso
8
Biobanks and Electronic Health Records: Open Issues
.......... 131
Paolo
Guarda
9
Informed Consent and Research Biobanks: A Challenge in
Three Dimensions
...................................... 143
Matteo Macilotti
Part II Intellectual Property and Biobanks
10
The Challenges of Achieving Open Source Sharing
of Biobank Data
....................................... 165
Donna M.
Gitter
11
Beyond Open Source: Patents, Biobanks and Sharing
.......... 191
E. Richard Gold and Dianne
Nicol
12
Opening Research Biobanks: An Overview
.................. 209
Roberto
Caso
and Rossana
Ducato
13
The Roles of Material Transfer Agreements in Genetics
Databases and Bio-Banks
................................ 231
Thomas
Margoni
14
Quasi-Patents
and Semi-Patents in
Biobanking............... 251
Gideon Parchomovsky and Michael Mattioli
15
Accessing Accessions: Biobanks and Benefit-Sharing
........... 267
Mark Perry
16
Conveying Information, Generating Trust: The Role of
Certifications in
Biobanking.............................. 281
Matteo Ferrari
Part III Biobanks: The Perspective of Biobanker s
17
Scientific and Managerial Premises and Unresolved Issues
in Tumour
Biobanking
Activities
.......................... 301
Mattia
Barbareschi,
Silvia
Fasanella,
Chiara Cantaloni,
and Silvia Giuliani
18
The Italian Prototype Networks of Research Biobanks
.......... 311
Giuliano D Agnolo
and Elena Bravo
19
Governance of Biobanks for Cancer Research: Proposal for
a Material Transfer Agreement
........................... 327
Barbara
Parodi,
Paola Visconti,
Tiziana Riizzon, and
Mauro
Truini
Index
................................................... 333
|
| any_adam_object | 1 |
| author2 | Pascuzzi, Giovanni |
| author2_role | edt |
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| author_facet | Pascuzzi, Giovanni |
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| dewey-ones | 340 - Law |
| dewey-raw | 340 |
| dewey-search | 340 |
| dewey-sort | 3340 |
| dewey-tens | 340 - Law |
| discipline | Rechtswissenschaft |
| format | Book |
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| spelling | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology Giovanni Pascuzzi ... (eds.) Berlin [u.a.] Springer 2013 VIII, 339 S. graph. Darst. txt rdacontent n rdamedia nc rdacarrier Geistiges Eigentum (DE-588)4136832-0 gnd rswk-swf Datenspeicherung (DE-588)4332175-6 gnd rswk-swf Medizin (DE-588)4038243-6 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Bioethik (DE-588)4006791-9 gnd rswk-swf Bioinformatik (DE-588)4611085-9 gnd rswk-swf Patentrecht (DE-588)4044884-8 gnd rswk-swf (DE-588)1071861417 Konferenzschrift 2010 Trient gnd-content Biobank (DE-588)7517760-2 s Medizin (DE-588)4038243-6 s Patentrecht (DE-588)4044884-8 s Bioinformatik (DE-588)4611085-9 s Datenspeicherung (DE-588)4332175-6 s DE-604 Geistiges Eigentum (DE-588)4136832-0 s Bioethik (DE-588)4006791-9 s 1\p DE-604 Pascuzzi, Giovanni edt Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025501579&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology Geistiges Eigentum (DE-588)4136832-0 gnd Datenspeicherung (DE-588)4332175-6 gnd Medizin (DE-588)4038243-6 gnd Biobank (DE-588)7517760-2 gnd Bioethik (DE-588)4006791-9 gnd Bioinformatik (DE-588)4611085-9 gnd Patentrecht (DE-588)4044884-8 gnd |
| subject_GND | (DE-588)4136832-0 (DE-588)4332175-6 (DE-588)4038243-6 (DE-588)7517760-2 (DE-588)4006791-9 (DE-588)4611085-9 (DE-588)4044884-8 (DE-588)1071861417 |
| title | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology |
| title_auth | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology |
| title_exact_search | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology |
| title_full | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology Giovanni Pascuzzi ... (eds.) |
| title_fullStr | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology Giovanni Pascuzzi ... (eds.) |
| title_full_unstemmed | Comparative issues in the governance of research biobanks property, privacy, intellectual property, and the role of technology Giovanni Pascuzzi ... (eds.) |
| title_short | Comparative issues in the governance of research biobanks |
| title_sort | comparative issues in the governance of research biobanks property privacy intellectual property and the role of technology |
| title_sub | property, privacy, intellectual property, and the role of technology |
| topic | Geistiges Eigentum (DE-588)4136832-0 gnd Datenspeicherung (DE-588)4332175-6 gnd Medizin (DE-588)4038243-6 gnd Biobank (DE-588)7517760-2 gnd Bioethik (DE-588)4006791-9 gnd Bioinformatik (DE-588)4611085-9 gnd Patentrecht (DE-588)4044884-8 gnd |
| topic_facet | Geistiges Eigentum Datenspeicherung Medizin Biobank Bioethik Bioinformatik Patentrecht Konferenzschrift 2010 Trient |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025501579&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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