Achieving justice in genomic translation: rethinking the pathway to benefit
Saved in:
| Other Authors: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
Oxford [u.a.]
Oxford University Press
2011
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| Subjects: | |
| Online Access: | Inhaltsverzeichnis |
| Item Description: | Includes bibliographical references and index |
| Physical Description: | X, 212 S. |
Staff View
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Record in the Search Index
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| adam_text | Titel: Achieving justice in genomic translation
Autor: Burke, Wylie
Jahr: 2011
CONTENTS
1. Making Good on the Promise of Genetics: Justice in
Translational Science 3
Sara Goering, Suzanne Holland, and Kelly Edwards
2. The Social, Political, and Economic Underpinnings of Biomedical
Research and Development: A Formidable Status Quo 22
Patricia C. Kuszler
3. The Input-Output Problem: Whose DNA Do We Study,
and Why Does It Matter? 40
Stephanie Malia Fullerton
4. The Autism Genetic Resource Exchange: Changing Pace, Priorities,
and Roles in Discovery Science 56
Holly K. Tabor and Martine D. Lappé
Commentary on the Discovery Phase of Research 72
Sara Goering, Suzanne Holland, and Kelly Edwards
5. Early Assessment of Translational Opportunities 76
Patricia Deverka and David L. Veenstra
6. The Power of Knowledge: How Carrier and Prenatal Screening Altered
the Clinical Goals of Genetic Testing 95
Nancy Press, Benjamin S. Wilfond, Mitzi Murray, and Wylie Burke
Commentary on the Development Phase of the Translational Cycle 108
Sara Goering, Suzanne Holland, and Kelly Edwards
7. Integrating Genetic Tests into Clinical Practice: The Role of Guidelines 112
Anne-Marie Laberge and Wylie Burke
CONTENTS
8. Genomics and the Health Commons 131
Nora Henrikson and Wylie Burke
Commentary on the Delivery Phase of the Translational Cycle 145
Sara Goering Suzanne Holland, and Kelly Edwards
9. The Role of Advocacy in Newborn Screening 149
Catharine Riley and Carolyn Watts
10. What Outcomes? Whose Benefits? 162
Wylie Burke and Nancy Press
Commentary on the Outcomes Phase of the Translational Cycle 177
Sara Goering Suzanne Holland, and Kelly Edwards
11. Bringing the Best Science to Bear on Youth Suicide:
Why Community Perspectives Matter 180
Rosalina James and Helene Starks
12. Conclusion 197
Kelly Edwards, Sara Goering Suzanne Holland,
and Maureen Kelley
Index 205
|
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| dewey-search | 174.2/96042 |
| dewey-sort | 3174.2 596042 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie |
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| spelling | Achieving justice in genomic translation rethinking the pathway to benefit ed. by Wylie Burke ... Oxford [u.a.] Oxford University Press 2011 X, 212 S. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references and index Human genetics / Research / Moral and ethical aspects Genomics / Research / Moral and ethical aspects Genetic screening / Moral and ethical aspects Genetic Research / ethics Bioethical Issues Genetic Predisposition to Disease Genetic Testing / ethics Translational Research / ethics Ethik Wissenschaftsethik (DE-588)4066602-5 gnd rswk-swf Humangenetik (DE-588)4072653-8 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Humangenetik (DE-588)4072653-8 s Wissenschaftsethik (DE-588)4066602-5 s b DE-604 Burke, Wylie edt HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=022571139&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Achieving justice in genomic translation rethinking the pathway to benefit Human genetics / Research / Moral and ethical aspects Genomics / Research / Moral and ethical aspects Genetic screening / Moral and ethical aspects Genetic Research / ethics Bioethical Issues Genetic Predisposition to Disease Genetic Testing / ethics Translational Research / ethics Ethik Wissenschaftsethik (DE-588)4066602-5 gnd Humangenetik (DE-588)4072653-8 gnd |
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| title | Achieving justice in genomic translation rethinking the pathway to benefit |
| title_auth | Achieving justice in genomic translation rethinking the pathway to benefit |
| title_exact_search | Achieving justice in genomic translation rethinking the pathway to benefit |
| title_full | Achieving justice in genomic translation rethinking the pathway to benefit ed. by Wylie Burke ... |
| title_fullStr | Achieving justice in genomic translation rethinking the pathway to benefit ed. by Wylie Burke ... |
| title_full_unstemmed | Achieving justice in genomic translation rethinking the pathway to benefit ed. by Wylie Burke ... |
| title_short | Achieving justice in genomic translation |
| title_sort | achieving justice in genomic translation rethinking the pathway to benefit |
| title_sub | rethinking the pathway to benefit |
| topic | Human genetics / Research / Moral and ethical aspects Genomics / Research / Moral and ethical aspects Genetic screening / Moral and ethical aspects Genetic Research / ethics Bioethical Issues Genetic Predisposition to Disease Genetic Testing / ethics Translational Research / ethics Ethik Wissenschaftsethik (DE-588)4066602-5 gnd Humangenetik (DE-588)4072653-8 gnd |
| topic_facet | Human genetics / Research / Moral and ethical aspects Genomics / Research / Moral and ethical aspects Genetic screening / Moral and ethical aspects Genetic Research / ethics Bioethical Issues Genetic Predisposition to Disease Genetic Testing / ethics Translational Research / ethics Ethik Wissenschaftsethik Humangenetik Aufsatzsammlung |
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