Prenatal testing and disability rights:
"In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover.
Saved in:
| Format: | Book |
|---|---|
| Language: | English |
| Published: |
Washington, D.C.
Georgetown Univ. Press
2000
|
| Series: | Hastings Center studies in ethics
|
| Subjects: | |
| Online Access: | Inhaltsverzeichnis |
| Summary: | "In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover. |
| Physical Description: | XVI, 371 S. |
| ISBN: | 0878408037 0878408045 |
Staff View
MARC
| LEADER | 00000nam a2200000 c 4500 | ||
|---|---|---|---|
| 001 | BV013504656 | ||
| 003 | DE-604 | ||
| 005 | 20141023 | ||
| 007 | t | ||
| 008 | 001221s2000 |||| 00||| eng d | ||
| 020 | |a 0878408037 |9 0-87840-803-7 | ||
| 020 | |a 0878408045 |9 0-87840-804-5 | ||
| 035 | |a (OCoLC)43615470 | ||
| 035 | |a (DE-599)BVBBV013504656 | ||
| 040 | |a DE-604 |b ger |e rakwb | ||
| 041 | 0 | |a eng | |
| 049 | |a DE-12 |a DE-29 |a DE-355 |a DE-11 |a DE-824 | ||
| 050 | 0 | |a RG628 | |
| 082 | 0 | |a 176 |2 21 | |
| 084 | |a CC 7264 |0 (DE-625)17679: |2 rvk | ||
| 084 | |a YQ 2500 |0 (DE-625)154055:12905 |2 rvk | ||
| 245 | 1 | 0 | |a Prenatal testing and disability rights |c ed. by Erik Parens ... |
| 264 | 1 | |a Washington, D.C. |b Georgetown Univ. Press |c 2000 | |
| 300 | |a XVI, 371 S. | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 490 | 0 | |a Hastings Center studies in ethics | |
| 520 | 3 | |a "In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover. | |
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Abortion, Eugenic | |
| 650 | 4 | |a Ethics, Medical | |
| 650 | 4 | |a Genetic Testing | |
| 650 | 4 | |a Prenatal Diagnosis | |
| 650 | 4 | |a Prenatal diagnosis |x Legal status, laws, etc | |
| 650 | 4 | |a Prenatal diagnosis |x Moral and ethical aspects | |
| 650 | 0 | 7 | |a Ethik |0 (DE-588)4015602-3 |2 gnd |9 rswk-swf |
| 650 | 0 | 7 | |a Pränatale Diagnostik |0 (DE-588)4047000-3 |2 gnd |9 rswk-swf |
| 655 | 7 | |0 (DE-588)4143413-4 |a Aufsatzsammlung |2 gnd-content | |
| 689 | 0 | 0 | |a Pränatale Diagnostik |0 (DE-588)4047000-3 |D s |
| 689 | 0 | 1 | |a Ethik |0 (DE-588)4015602-3 |D s |
| 689 | 0 | |5 DE-604 | |
| 700 | 1 | |a Parens, Erik |d 1957- |e Sonstige |0 (DE-588)136649416 |4 oth | |
| 856 | 4 | 2 | |m HBZ Datenaustausch |q application/pdf |u http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=009218387&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |3 Inhaltsverzeichnis |
| 943 | 1 | |a oai:aleph.bib-bvb.de:BVB01-009218387 | |
Record in the Search Index
| _version_ | 1811034648837357568 |
|---|---|
| adam_text |
CONTENTS
Erik Parens and Adrienne Asch
Introduction ix
PART ONE. Overview and Context of the
Project
Erik Parens and Adrienne Asch
The Disability Rights Critique of Prenatal Genetic Testing:
Reflections and Recommendations 3
Cynthia M. Powell
The Current State of Prenatal Genetic Testing in the United
States 44
PART TWO. Parenthood, Disability, and
Prenatal Testing
Deborah Kent
Somewhere a Mockingbird 51
Mary Ann Baily
Why I Had Amniocentesis 64
Philip M. Ferguson, Alan Gartner, and
Dorothy K. Lipsky
The Experience of Disability in Families: A Synthesis of Research
and Parent Narratives 12
William Ruddick
Ways to Limit Prenatal Testing 95
V
vi Contents
Bonnie Steinbock
Disability, Prenatal Testing, and Selective Abortion 108
Bruce Jennings
Technology and the Genetic Imaginary: Prenatal Testing and the
Construction of Disability 124
PART THREE. The Messages and Meanings of
Prenatal Genetic Testing
Marsha Saxton
Why Members of the Disability Community Oppose Prenatal
Diagnosis and Selective Abortion 147
Eva Feder Kittay with Leo Kittay
On the Expressivity and Ethics of Selective Abortion for
Disability: Conversations with My Son 165
James Lindemann Nelson
The Meaning of the Act: Reflections on the Expressive Force of
Reproductive Decision Making and Policies 196
Nancy Press
Assessing the Expressive Character of Prenatal Testing:
The Choices Made or the Choices Made Available? 214
Adrienne Asch
Why I Haven't Changed My Mind about Prenatal Diagnosis:
Reflections and Refinements 234
PART FOUR. Making Policies, Delivering
Services
Dorothy C. Wertz
Drawing Lines: Notes for Policymakers 261
Contents vii
Jeffrey R. Botkin
Line Drawing: Developing Professional Standards Jor Prenatal
Diagnostic Services 288
Pilar N. Ossorio
Prenatal Genetic Testing and the Courts 308
Steven J. Ralston
Reflections from the Trenches: One Doctor's Encounter with
Disability Rights Arguments 334
Barbara Bowles Biesecker and Lori Hamby
What Difference the Disability Community Arguments Should
Make for the Delivery of Prenatal Genetic Information 340
Contributors 358
Index 361 |
| any_adam_object | 1 |
| author_GND | (DE-588)136649416 |
| building | Verbundindex |
| bvnumber | BV013504656 |
| callnumber-first | R - Medicine |
| callnumber-label | RG628 |
| callnumber-raw | RG628 |
| callnumber-search | RG628 |
| callnumber-sort | RG 3628 |
| callnumber-subject | RG - Gynecology and Obstetrics |
| classification_rvk | CC 7264 YQ 2500 |
| ctrlnum | (OCoLC)43615470 (DE-599)BVBBV013504656 |
| dewey-full | 176 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 176 - Ethics of sex and reproduction |
| dewey-raw | 176 |
| dewey-search | 176 |
| dewey-sort | 3176 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie Medizin |
| format | Book |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>00000nam a2200000 c 4500</leader><controlfield tag="001">BV013504656</controlfield><controlfield tag="003">DE-604</controlfield><controlfield tag="005">20141023</controlfield><controlfield tag="007">t</controlfield><controlfield tag="008">001221s2000 |||| 00||| eng d</controlfield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">0878408037</subfield><subfield code="9">0-87840-803-7</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">0878408045</subfield><subfield code="9">0-87840-804-5</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)43615470</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)BVBBV013504656</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-604</subfield><subfield code="b">ger</subfield><subfield code="e">rakwb</subfield></datafield><datafield tag="041" ind1="0" ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-12</subfield><subfield code="a">DE-29</subfield><subfield code="a">DE-355</subfield><subfield code="a">DE-11</subfield><subfield code="a">DE-824</subfield></datafield><datafield tag="050" ind1=" " ind2="0"><subfield code="a">RG628</subfield></datafield><datafield tag="082" ind1="0" ind2=" "><subfield code="a">176</subfield><subfield code="2">21</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="a">CC 7264</subfield><subfield code="0">(DE-625)17679:</subfield><subfield code="2">rvk</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="a">YQ 2500</subfield><subfield code="0">(DE-625)154055:12905</subfield><subfield code="2">rvk</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">Prenatal testing and disability rights</subfield><subfield code="c">ed. by Erik Parens ...</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Washington, D.C.</subfield><subfield code="b">Georgetown Univ. Press</subfield><subfield code="c">2000</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">XVI, 371 S.</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="b">n</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="b">nc</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="490" ind1="0" ind2=" "><subfield code="a">Hastings Center studies in ethics</subfield></datafield><datafield tag="520" ind1="3" ind2=" "><subfield code="a">"In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover.</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Ethik</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Abortion, Eugenic</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Ethics, Medical</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Genetic Testing</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Prenatal Diagnosis</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Prenatal diagnosis</subfield><subfield code="x">Legal status, laws, etc</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Prenatal diagnosis</subfield><subfield code="x">Moral and ethical aspects</subfield></datafield><datafield tag="650" ind1="0" ind2="7"><subfield code="a">Ethik</subfield><subfield code="0">(DE-588)4015602-3</subfield><subfield code="2">gnd</subfield><subfield code="9">rswk-swf</subfield></datafield><datafield tag="650" ind1="0" ind2="7"><subfield code="a">Pränatale Diagnostik</subfield><subfield code="0">(DE-588)4047000-3</subfield><subfield code="2">gnd</subfield><subfield code="9">rswk-swf</subfield></datafield><datafield tag="655" ind1=" " ind2="7"><subfield code="0">(DE-588)4143413-4</subfield><subfield code="a">Aufsatzsammlung</subfield><subfield code="2">gnd-content</subfield></datafield><datafield tag="689" ind1="0" ind2="0"><subfield code="a">Pränatale Diagnostik</subfield><subfield code="0">(DE-588)4047000-3</subfield><subfield code="D">s</subfield></datafield><datafield tag="689" ind1="0" ind2="1"><subfield code="a">Ethik</subfield><subfield code="0">(DE-588)4015602-3</subfield><subfield code="D">s</subfield></datafield><datafield tag="689" ind1="0" ind2=" "><subfield code="5">DE-604</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Parens, Erik</subfield><subfield code="d">1957-</subfield><subfield code="e">Sonstige</subfield><subfield code="0">(DE-588)136649416</subfield><subfield code="4">oth</subfield></datafield><datafield tag="856" ind1="4" ind2="2"><subfield code="m">HBZ Datenaustausch</subfield><subfield code="q">application/pdf</subfield><subfield code="u">http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=009218387&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA</subfield><subfield code="3">Inhaltsverzeichnis</subfield></datafield><datafield tag="943" ind1="1" ind2=" "><subfield code="a">oai:aleph.bib-bvb.de:BVB01-009218387</subfield></datafield></record></collection> |
| genre | (DE-588)4143413-4 Aufsatzsammlung gnd-content |
| genre_facet | Aufsatzsammlung |
| id | DE-604.BV013504656 |
| illustrated | Not Illustrated |
| indexdate | 2024-09-24T00:20:29Z |
| institution | BVB |
| isbn | 0878408037 0878408045 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-009218387 |
| oclc_num | 43615470 |
| open_access_boolean | |
| owner | DE-12 DE-29 DE-355 DE-BY-UBR DE-11 DE-824 |
| owner_facet | DE-12 DE-29 DE-355 DE-BY-UBR DE-11 DE-824 |
| physical | XVI, 371 S. |
| publishDate | 2000 |
| publishDateSearch | 2000 |
| publishDateSort | 2000 |
| publisher | Georgetown Univ. Press |
| record_format | marc |
| series2 | Hastings Center studies in ethics |
| spelling | Prenatal testing and disability rights ed. by Erik Parens ... Washington, D.C. Georgetown Univ. Press 2000 XVI, 371 S. txt rdacontent n rdamedia nc rdacarrier Hastings Center studies in ethics "In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover. Ethik Abortion, Eugenic Ethics, Medical Genetic Testing Prenatal Diagnosis Prenatal diagnosis Legal status, laws, etc Prenatal diagnosis Moral and ethical aspects Ethik (DE-588)4015602-3 gnd rswk-swf Pränatale Diagnostik (DE-588)4047000-3 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Pränatale Diagnostik (DE-588)4047000-3 s Ethik (DE-588)4015602-3 s DE-604 Parens, Erik 1957- Sonstige (DE-588)136649416 oth HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=009218387&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Prenatal testing and disability rights Ethik Abortion, Eugenic Ethics, Medical Genetic Testing Prenatal Diagnosis Prenatal diagnosis Legal status, laws, etc Prenatal diagnosis Moral and ethical aspects Ethik (DE-588)4015602-3 gnd Pränatale Diagnostik (DE-588)4047000-3 gnd |
| subject_GND | (DE-588)4015602-3 (DE-588)4047000-3 (DE-588)4143413-4 |
| title | Prenatal testing and disability rights |
| title_auth | Prenatal testing and disability rights |
| title_exact_search | Prenatal testing and disability rights |
| title_full | Prenatal testing and disability rights ed. by Erik Parens ... |
| title_fullStr | Prenatal testing and disability rights ed. by Erik Parens ... |
| title_full_unstemmed | Prenatal testing and disability rights ed. by Erik Parens ... |
| title_short | Prenatal testing and disability rights |
| title_sort | prenatal testing and disability rights |
| topic | Ethik Abortion, Eugenic Ethics, Medical Genetic Testing Prenatal Diagnosis Prenatal diagnosis Legal status, laws, etc Prenatal diagnosis Moral and ethical aspects Ethik (DE-588)4015602-3 gnd Pränatale Diagnostik (DE-588)4047000-3 gnd |
| topic_facet | Ethik Abortion, Eugenic Ethics, Medical Genetic Testing Prenatal Diagnosis Prenatal diagnosis Legal status, laws, etc Prenatal diagnosis Moral and ethical aspects Pränatale Diagnostik Aufsatzsammlung |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=009218387&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT parenserik prenataltestinganddisabilityrights |