Helping low birth weight, premature babies: the infant health and development program
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| Format: | Book |
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| Language: | English |
| Published: |
Stanford, Calif.
Stanford Univ. Press
1997
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| Subjects: | |
| Online Access: | Inhaltsverzeichnis |
| Physical Description: | XXXVIII, 635 S. Ill., graph. Darst. |
| ISBN: | 0804726124 |
Staff View
MARC
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| 245 | 1 | 0 | |a Helping low birth weight, premature babies |b the infant health and development program |c ed. by Ruth T. Gross ... |
| 264 | 1 | |a Stanford, Calif. |b Stanford Univ. Press |c 1997 | |
| 300 | |a XXXVIII, 635 S. |b Ill., graph. Darst. | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 610 | 2 | 4 | |a Infant Health and Development Program |
| 650 | 4 | |a Birth weight, Low |x Complications | |
| 650 | 4 | |a Child Development | |
| 650 | 4 | |a Developmental Disabilities |x prevention & control | |
| 650 | 4 | |a Developmental disabilities |z United States |x Prevention | |
| 650 | 4 | |a Follow-Up Studies | |
| 650 | 4 | |a Infant, Low Birth Weight | |
| 650 | 4 | |a Infant, Premature | |
| 650 | 4 | |a Premature infants |x Development | |
| 650 | 4 | |a Premature infants |x Growth | |
| 650 | 4 | |a Premature infants |x Services for |z United States | |
| 650 | 4 | |a Program Evaluation | |
| 651 | 4 | |a USA | |
| 700 | 1 | |a Gross, Ruth T. |e Sonstige |4 oth | |
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Record in the Search Index
| _version_ | 1804126795033739264 |
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| adam_text | Contents
Abbreviations xxxiii
Foreword xxxv
parti The I HDP Clinical Trial: Rationale and Program
Description
1 The LBW, Premature Infant 3
2 The Intervention Model 17
3 Home Visiting 27
4 The Child Development Centers 42
5 The Research Plan 59
6 Rationale for Selection of Measures: Cognitive
Development 67
7 Rationale for Selection of Measures: Behavioral
Competence 84
8 Rationale for Selection of Measures: Health Status 93
9 Random Assignment in Clinical Trials: Issues in
Planning 106
part n The Study Results
10 Recruitment and Retention 125
11 The Primary Child Outcomes 139
12 Possible Confounding Issues Concerning the Primary
Child Outcomes 154
13 Enhancing the Cognitive Outcomes of LBW,
Premature Infants: For Whom Is the Intervention
Most Effective? 181
14 Participation in the Intervention and Its Effect on the
Cognitive Outcome 190
civ Contents
15 Changes in Cognition and Behavior from 12 to 36
Months 203
16 Effects of the Intervention on Different Domains of
Cognitive Functioning 218
17 Use of Health Services 228
18 Quality of the Home Environment 242
19 Mother Child Interaction 257
20 Maternal Problem Solving 276
21 Maternal Attitudes and Knowledge About Child
Development 290
part in Studies of Growth and Development
22 Growth Studies 307
23 Neurologic Status at 36 Months of Age 324
24 Social Competence: The Adaptive Social Behavior
Inventory (ASBI) 335
25 The Neonatal Health Index 341
part iv Operational Issues
26 The National Study Office: Structure and Function 361
27 The Program Development Office: Structure and
Function 370
28 Operational Issues in Implementing the Evaluation 381
29 Considerations in Implementing the Masked
Assessments 394
30 The Data Management System 4°8
31 Maintaining the Cohort 425
32 Serving Children with Special Needs 432
33 Health and Safety in the CDCs 44
34 Staffing and Interdisciplinary Teamwork 460
p a r t v Cost Analysis of the IHDP
35 The Cost of Implementing the Intervention 479
Appendixes 505
Journals Cited 557
References 563
Index 627
Figures
CHAPTER I
Fig. i.i U.S. annual rates of neonatal mortality and LBW
births, 1955 85 4
Fig. 1.2 Evolution of developmental dysfunction in LBW,
premature children 8
CHAPTER 2
Fig. 2.1 Biosocial systems model 19
CHAPTER 3
Fig. 3.1 STOP card 35
Fig. 3.2 THINK card 36
Fig. 3.3 PLAN card 37
Fig. 3.4 PLAN sheet 38
CHAPTER 4
Fig. 4.1 Number of Partners activities introduced and used in
the CDCs 51
CHAPTER 5
Fig. 5.1 Research schematic 60
CHAPTER 9
Fig. 9.1 Sample accrual graphs in the heavier and lighter groups
over the weeks of recruitment 119
Fig. 9.2 Example of monitoring graphs 120
vi Figures
CHAPTER 10
Fig. 10. i Kaplan Meier survival curves for retention within the
INT and FU groups 134
CHAPTER I 2
Fig. 12.1 Standardized cognitive outcome scores at 12 and 36
months, by language exposure status and treatment
group 160
Fig. 12.2 Average total morbidity indices by SES group and
weight groups in the FU group 178
CHAPTER 14
Fig. 14.1 Mean family participation index 194
Fig. 14.2 Mean Stanford Binet IQ scores at age three 198
Fig. 14.3 Percentage of borderline and retarded intellectual
performance 199
CHAPTER 15
Fig. 15.1 Children s cognitive development over time by
treatment group 207
Fig. 15.2 Children s cognitive development over time by birth
weight and treatment group 209
Fig. 15.3 Means for 36 month CBCL by treatment group and
24 month BCL score 211
chapter 16
Fig. 16.1 Mean comparisons of PPVT K scores at 36 months by
treatment group and ethnicity 223
Fig. 16.2 Mean comparisons of visual motor/spatial skills
standardized scores at 36 months by treatment group
and ethnicity 224
CHAPTER 17
Fig. 17.1 Average hospitalizations over three years 234
Fig. 17.2 Average hospital days over three years 234
Fig. 17.3 Average outpatient surgeries in three years 235
Fig. 17.4 Average doctors visits by year 236
Fig. 17.5 Average total doctors visits in three yean 236
Figures
CHAPTER 19
Fig. 19.1 Mean child ratings with significant treatment
interactions: Percentage of Time Off Task, and
Enthusiasm, by Race/Ethnicity 268
CHAPTER 22
Fig. 22.1 Birth weight plotted for total sample, white and black
infants separately, with gestational age as reference
standard 311
Fig. 22.2 Birth weight plotted for total sample, white and black
infants separately, with birth length as reference
standard 312
Fig. 22.3 Average, 90%, and 10% weight growth patterns for
males presented by birth weight group 313
Fig. 22.4 Average, 90%, and 10% weight growth patterns for
females presented by birth weight group 314
Fig. 22.5 Average, 90%, and 10% length growth patterns for
males presented by birth weight group 315
Fig. 22.6 Average, 90%, and 10% length growth patterns for
females presented by birth weight group 316
Fig. 22.7 Average, 90%, and 10% head circumference growth
patterns for males presented by birth weight group 317
Fig. 22.8 Average, 90%, and 10% head circumference growth
patterns for females presented by birth weight group 318
CHAPTER 23
Fig. 23.1 Neurologic status at three years 327
CHAPTER 26
Fig. 26.1 Organization of the IHDP 362
Fig. 26.2 Organizational chart of the NSO 364
Fig. 26.3 Program Evaluation Division 364
Fig. 26.4 Field Operations Division 365
Fig. 26.5 Data Analysis Systems Division 365
Fig. 26.6 Program Administration Division 366
CHAPTER 27
Fig. 27.1 Organization of the PDO 371
xviii Figures
CHAPTER 30
Fig. 30.1 IHDP data flow 410
Fig. 30.2 Structure of IHDP databases 418
CHAPTER 34
Fig. 34.1 Typical organization at the sites 466
Tables
CHAPTER I
Table i.i Inborn neonatal mortality rates for VLBW infants,
pooled institutional data 5
Table 1.2 Surviving LB W infants with one or more major
handicaps 6
Table 1.3 Comparison of IQ means for LBW children versus
NBW controls within social class groups 10
Table 1.4 Mean frequency of affective behaviors, contingent
behaviors, and expressivity ratings of infants and their
mothers 13
CHAPTER 9
Table 9.1 Probability that the number of subjects among N
assigned to a treatment group with probability p is
within one count of the expected number Np 109
Table 9.2a Planned per site and total sample sizes in the IHDP 111
Table 9.2b Actual per site and total sample sizes in the IHDP in
Table 9.3 Probability that among N = 45 subjects using the
specified Efron procedure, exactly K will be assigned
to the treatment group 114
CHAPTER 10
Table 10.1 Screening, recruitment, and enrollment by site 129
Table 10.2 Targeted and actual enrollment for primary analysis
group 129
Table 10.3 Baseline characteristics significantly associated with
enrollment status 131
x Tables
Table 10.4 Reason for dropout by age at last assessment completed 132
Table 10.5 Significant baseline characteristic and treatment X
independent variable interaction of enrolled infants by
retention status 133
CHAPTER I I
Table 11.1 Targeted and actual enrollment for primary analysis
group 141
Table 11.2 Baseline characteristics (before randomization) of the
primary analysis group by site 146
Table 11.3 Primary outcome measures, by study group 147
Table 11.4 Cumulative Stanford Binet Scale IQ scores, by birth
weight and study group 147
Table 11.5 Multiple regression analyses: Relationship of initial
status variables to three major outcome measures 148
Table 11.6 Site variations in three primary outcome measures 152
CHAPTER 12
Table 12.1 Sample size (prevalence) of bilingualism exposure
by site 157
Table 12.2 Comparability of monolingual and bilingual groups by
site and characteristic 159
Table 12.3 Standardized cognitive outcome scores at 12 and 36
months CA by site, treatment group, and language
exposure status 160
Table 12.4 Within subjects effects from repeated measures
analysis of variance of test scores at 12 and 36 months 161
Table 12.5 Descriptive statistics of behavior problem scores from
different instruments and raters 166
Table 12.6 Interrater agreement at 24 and 36 months:
Correlations of behavior problem scores for different
observers and instruments 167
Table 12.7 Interrater agreement at 24 and 36 months: Percentage
agreement on clinical status of total scores for two
instruments I(58
Table 12.8 Stepwise linear regression to predict maternal report of
CBCL total score at 36 months 168
Table 12.9 Site variations on health status measures: Morbidity
index and serious morbidity index 173
Tables :
Table 12.10 Analysis of the major components of the mother s
report 177
Table 12.11 Correlation of MI and SMI and other health measures 179
CHAPTER 13
Table 13.1 Number of children in primary analysis group by site,
treatment group, maternal education, and
maternal race 182
Table 13.2 Mean birth weight, Neonatal Health Index, and
maternal age by maternal race, maternal education,
and treatment group 184
Table 13.3 Comparisons of IQ scores at age three for the INT
and FU Groups by birth weight group, maternal
education, and maternal race 185
Table 13.4 Multiple regression analyses: Association of initial
status variables to child cognitive outcome in four
maternal education by ethnicity subgroups 186
CHAPTER 14
Table 14.1 Protocol for I HDP structure 192
Table 14.2 Means and standard deviations of participation
frequencies in each of the three intervention
modalities 193
Table 14.3 Regression of participation index on initial status
variables 195
Table 14.4 Regression of Stanford Binet IQ scores at 36 months on
initial status variables and participation index 197
Table 14.5 Regression of Behavior Problem Checklist scores at 36
months on initial status variables and participation
index 200
CHAPTER 15
Table 15.1 Multiple linear regression analyses: Association of
initial status variables and their interactions with
treatment to cognitive test scores 206
Table 15.2 Summary of the hierarchical multiple linear
regressions: Effects of intervention controlling for
previous cognitive test scores 208
xii Tables
CHAPTER 16
Table 16. i Baseline characteristics of the two treatment groups 220
Table 16.2 Multiple linear regression analyses: Association of
initial status variables and their interactions with
treatment to 24 month cognitive factors from the
Bayley 222
Table 16.3 Multiple linear regression analyses: Association of
initial status variables and their interactions with
treatment to 36 month cognitive factors 224
CHAPTER 17
Table 17.1 Comparison of children with and without complete
health care use data 233
Table 17.2 Comparison of study groups at 36 months CA by
hospital care use 233
Table 17.3 Comparison of study groups at 36 months CA by
ambulatory care use 237
Table 17.4 Summary of multiple linear regression analyses:
Hospital care use 238
Table 17.5 Summary of multiple linear regression analyses:
Ambulatory care use 238
CHAPTER 18
Table 18.1 HOME Inventory scores at 12 and 36 months, by study
and birth weight group 249
Table 18.2 Multiple linear regression analyses for the 36 month
EC HOME Inventory scores 250
Table 18.3 EC HOME total scores at 36 months, by site and
study group 251
Table 18.4 Correlations of 36 month EC HOME Inventory
scores and primary outcome measures 252
CHAPTER 19
Table 19.1 Number of subjects with available videotape data by
problem solving task 263
Table 19.2 Initial status characteristics of subjects with codable
videotape 264
Table 19.3 Multiple linear regression analyses: Relationship of
initial status variables to maternal interactive and
dyadic ratings on rake task 266
Tables xx
Table 19.4 Multiple linear regression analyses: Relationship of
initial status variables to child ratings on rake task 267
Table 19.5 Comparison of treatment groups 269
Table 19.6 Correlations among maternal, dyadic, and child ratings
for total sample 270
Table 19.7 Correlations between maternal, dyadic, and child
ratings and 36 month IQ scores, behavior problem
scores, and total morbidity index for total sample 271
CHAPTER 20
Table 20.1 Problems discussed during home visits 280
Table 20.2 Problems identified on plan sheets 284
Table 20.3 Multiple linear regression analyses: Relationship of
initial status variables and treatment to Wasik Problem
Solving Rating Scale and the Health and Daily Living
Form coping scales at 36 months 287
CHAPTER 21
Table 21.1 Means and standard deviations for child rearing belief
measures for total sample 297
Table 21.2 Pearson product moment correlations among maternal
knowledge instruments 298
Table 21.3 Multiple linear regression analysis: Sociodemographic
correlates of child rearing beliefs 299
Table 21.4 Multiple linear regression analyses: Child rearing
beliefs, child characteristics, and sociodemographic
characteristics as correlates of home environment 300
CHAPTER 22
Table 22.1 Percentage of small for gestational age infants by
measurement, site, and ethnicity 310
Table 22.2 Growth rates of weight, length, and head
circumference by birth weight group and gender 3 19
Table 22.3 Regression analysis on growth status and growth velocity 320
CHAPTER 23
Table 23.1 Summary of abnormal neurologic classification 328
Table 23.2 Summary of suspicious neurologic classification 328
Table 23.3 Neurological status at three years by indicators of status
at birth 329
civ Tables
CHAPTER 24
Table 24.1 Items on the Adaptive Social Behavior Inventory
(ASBI) scales 338
Table 24.2 Scores on the Adaptive Social Behavior Inventory
(ASBI) at 36 months 339
Table 24.3 Comply scale scores for males and females 339
CHAPTER 25
Table 25.1 Norms table for N HI Bw 348
Table 25.2 Percentile equivalents for NHIBw values 350
Table 25.3 Multiple linear regression: Predicting duration of
mechanical ventilation 3 5!
Table 25.4 Multiple linear regression: Predicting the Bayley
Mental Index at 12 months 352
Table 25.5 Effect sizes for 53 neonatal conditions 354
Table 25.6 Multiple linear regression: Degree to which NHIBW is
influenced by other factors 355
CHAPTER 27
Table 27.1 Sources of data concerning implementation of the
intervention: Partners curriculum at CDC 377
CHAPTER 28
Table 28.1 Assessment schedule 383
CHAPTER 29
Table 29.1 IHDP assessment schedule, variables, and measures:
Masked assessments 395
CHAPTER 35
Table 35.1 Personnel costs: IHDP 484
Table 35.2 Personnel costs: EIP 485
Table 35.3 Personnel costs: RCC 485
Table 35.4 Therapy service costs: EIP 480
Table 35.5 Operational costs: All programs 487
Table 35.6 Food service costs: All programs 487
Table 35.7 Transportation costs: IHDP 488
Table 35.8 Transportation costs: EIP 488
Table 35.9 Space costs: IHDP 49»
Tables xj
Table 35.10 Space costs: EIP 491
Table 35.11 Space costs: RCC 491
Table 35.12 Program costs: All categories 492
Table 35.13 Costper child: All categories 492
Table 35.14 Estimated costs for replication 496
Table 35.15 Preliminary analysis of placement of IHDP children
from Miami site and an NBW comparison group 501
Appendixes
CHAPTER 3
App. 3A Home Visit Report 505
App. 3B Record of Family Contact 508
chapter 4
App. 4A Goal Statements of the Ten Criteria of High Quality
Early Childhood Programs 509
App. 4B IHDP Daily Classroom Summary 510
App. 4C IHDP Parent Involvement Policies 512
App. 4D Parent Group Meeting Topics 514
CHAPTER 5
App. 5 A Reasons for Exclusion from the Study Sample 515
App. 5B Methodology 516
CHAPTER 10
App. 10A Inclusion/Exclusion Determination Form 518
App. 10B Reasons for Exclusion from Eligibility 519
App. 10C Reasons for Not Enrolling 520
CHAPTER 19
App. 19A Descriptions of Maternal, Dyadic, and Child Ratings
and Kappa Coefficients for Independently Coded
Ratings 521
CHAPTER 20
App. 20A Problem Solving Planning Sheet 522
App. 20B Problem Solving Planning Sheet 523
cviii Appendixes
App. 20C Checklist of Problem Solving Skills: Parent Version 524
App. 20D Wasik Problem Solving Rating Scale 528
App. 20E Pilot Testing of Problem Solving Instruments 530
App. 20F Abbreviated Version of the Health and Daily Living
Form: Coping Scales 531
CHAPTER 23
App. 23A 36 Month Neurologic Examination 533
CHAPTER 25
App. 25A Calculation of NHIBW Values from LOS and BW 534
CHAPTER 27
App. 27A Typical On Site Activities of PDO Staff 535
App. 27B Questions Used by PDO Visitors to Sites 53*5
App. 27C Sample Monthly Report Table 537
App. 27D Sample Monthly Report Table—Arkansas 538
CHAPTER 28
App. 28 A Descriptions of Variables and Measures 539
App. 28B Assessment Schedule, Variables, and Measures 542
App. 28C IHDP Manual of Operations: Table of Contents 544
chapter 29
App. 29A Other Masked Assessments: Maternal IQ, Mother
Child Interaction, Child Growth 545
App. 29B Responsibilities of the Evaluation Coordinators 54
App. 29C Components of On Site Training of Masked Assessors 547
CHAPTER 30
App. 30A IHDP Data Quality Control Form 54^
CHAPTER 31
App. 31A IHDP Identification and Tracking Form 549
chapter 33
App. 33A Topics Covered in the IHDP Health and Safety Manual 552
App. 33B Health and Safety Training Requirements for the
CDC Staff 553
App. 33C Reading List 554
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| geographic | USA |
| geographic_facet | USA |
| id | DE-604.BV012179427 |
| illustrated | Illustrated |
| indexdate | 2024-07-09T18:23:07Z |
| institution | BVB |
| isbn | 0804726124 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-008252969 |
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| physical | XXXVIII, 635 S. Ill., graph. Darst. |
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| publisher | Stanford Univ. Press |
| record_format | marc |
| spelling | Helping low birth weight, premature babies the infant health and development program ed. by Ruth T. Gross ... Stanford, Calif. Stanford Univ. Press 1997 XXXVIII, 635 S. Ill., graph. Darst. txt rdacontent n rdamedia nc rdacarrier Infant Health and Development Program Birth weight, Low Complications Child Development Developmental Disabilities prevention & control Developmental disabilities United States Prevention Follow-Up Studies Infant, Low Birth Weight Infant, Premature Premature infants Development Premature infants Growth Premature infants Services for United States Program Evaluation USA Gross, Ruth T. Sonstige oth HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=008252969&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Helping low birth weight, premature babies the infant health and development program Infant Health and Development Program Birth weight, Low Complications Child Development Developmental Disabilities prevention & control Developmental disabilities United States Prevention Follow-Up Studies Infant, Low Birth Weight Infant, Premature Premature infants Development Premature infants Growth Premature infants Services for United States Program Evaluation |
| title | Helping low birth weight, premature babies the infant health and development program |
| title_auth | Helping low birth weight, premature babies the infant health and development program |
| title_exact_search | Helping low birth weight, premature babies the infant health and development program |
| title_full | Helping low birth weight, premature babies the infant health and development program ed. by Ruth T. Gross ... |
| title_fullStr | Helping low birth weight, premature babies the infant health and development program ed. by Ruth T. Gross ... |
| title_full_unstemmed | Helping low birth weight, premature babies the infant health and development program ed. by Ruth T. Gross ... |
| title_short | Helping low birth weight, premature babies |
| title_sort | helping low birth weight premature babies the infant health and development program |
| title_sub | the infant health and development program |
| topic | Infant Health and Development Program Birth weight, Low Complications Child Development Developmental Disabilities prevention & control Developmental disabilities United States Prevention Follow-Up Studies Infant, Low Birth Weight Infant, Premature Premature infants Development Premature infants Growth Premature infants Services for United States Program Evaluation |
| topic_facet | Infant Health and Development Program Birth weight, Low Complications Child Development Developmental Disabilities prevention & control Developmental disabilities United States Prevention Follow-Up Studies Infant, Low Birth Weight Infant, Premature Premature infants Development Premature infants Growth Premature infants Services for United States Program Evaluation USA |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=008252969&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT grossrutht helpinglowbirthweightprematurebabiestheinfanthealthanddevelopmentprogram |